Thanks

[Suzyhayes]

I would like to thank all the people who have offered me advice and support since I joined this forum especially Dan.

In spite of trying many medications and therapies I still live with constant neuropathic pain but it is a comfort to know I am not alone.

I wish everyone a happy Christmas and a pain free new year.

Gros Bisous to you all from sunny France

[Suzyhayes]

Thanks again Dan for your advice

What is a neuromodulation and a spinal cord simulator?

I am so weary of seeking new treatments and failing to get any positive result but perhaps in the new year I will seek further help.

How are you doing? Hope you are feeling better.

Bon noël et

Joyeux l'année nouvelle

[Jtal19305]

Hi Suzy

I too since my back surgery have been in constant neuropathic pain. It's mainly my left sole of foot, left calf and left outer thigh. It has just about ruined my life. Where do you have pain? What helps it? Why did it start? I believe.y surgery was either unnecessary and or the surgeon irritated my spinal cord as I had a T12-L1 laminectomy disectomy with interbody fusion. I also had a L2-L3 hemi laminectomy left side. Since the fusion cage goes in on the left side that is why.y issues started in left foot. I had a large disc bulge and bone spurs that were narrowing my canal there and I had developed symptoms of leg weakness prior to surgery. I believe the surgeon looked at the mri and my symptoms and recommended surgery. My spine was probably like that for years and my leg weakness could have been brought on by anything that inflamed my back like a chiropractic treatment I regretably had days before my legs got weak. So what's done is done. I can't change the past. I'm told it could get better but need some time to heal like 12 to 18 months. My surgery was about six months ago. Im 48 healthy male now living with contrast nerve pain. I have instrumentation in my spine and I will never be the same. I just hope nerves settle down. Please anyone with advice and tips I would appreciate as well as words of encouragement. Suzy o feel for you and everyone else suffering for whatever reason. Our lives are made more difficult and we pray and wait for relief.

I'm trying to find new doctor to help me but thos has not been easy too. I'm in South Florida but soon to be in the Philadelphia area. My wish would have been to wait it out and not be cut open. I thought it would help me. Maybe it was suppose to but the surgeon did a risky procedure near the cord and it's irritated. So I wait and hope it gets better.

Merry Christmas

Jerry

[Suzyhayes]

Hi Jerry, my neuropathy is in my hands following three operations on my neck for stenosis including a lamenectomy three and a half years ago. I have tried many therapies and many medicaments but nothing helps. I live in France and I would like to try sativex which is a mouth spray based on canabis but so far not available here. Perhaps it is available where you are.

Also Dan on the forum suggested electro spinal stimulation. Have you heard of it? That treatment may be available in the States but not sure if it exists here.

Hope you can find some relief. Not much fun living with constant pain.

Bon Noël

[Suzyhayes]

Thanks again for your advice. I don't know if the electro stimulation is available here but I will go back to the pain clinic in the New Year. Normally they don't suggest anything other than drugs unless you ask. I asked for Botox injections and got them but they didn't help at all.

Concerning sativex I think it is now available in France but only for MS patients.

Is Tapentadol similiar to Tramadol? I have taken Tramadol on and off but they don't have much impact on the pain.

I think I'm a hopeless case. Probably a visit to Dignitas should be my next move. (only joking). I'm not ready to give up yet.

hope you are feeling better. Bisous

[Suzyhayes]

Sorry to sound so negative but I've tried the lidocaine patches and they didn't help and I wouldn't be able to get a prescription here for sativex but I will ask my doctor at the pain clinic again. If I can get a prescription I would be able to go to a pharmacy here. Thank you so much for your efforts to help me. You seem to be a very special person. I wish you all the best Dan.

[Suzyhayes]

Thanks again Dan, I've sent an e mail to Dr. Jenner so I'll let you know what response I receive.

If I can find some relief without taking opiads I would prefer because of the side effects.

Certainly Tramadol even at a high doze has no effect.

Best regards

[Suzyhayes]

Thanks Dan,

I will show this article to the doctor at the pain clinic when I next get a rendezvous. Looks promising.