I have been advised to join this community from a fellow Lupus member.
I have Ehlers Danlos hypermobilty, SLE Lupus, Rheumatoid Arthritis, fibromyalgia, sjogrens, Raynaud's ,prolonged QT and survived thyroid cancer.My two youngest children still at home and also have Ehlers Danlos, ADHD, aspergers,Raynaud's, epilepsy and my husband has osteoarthritis. I have always kept a positive attitude and kept us all seeing the funny side of life and dealt with the pain,fatigue and associated interesting ? effects of the above but now have been diagnosed with CRPS or rsd or hand and shoulder syndrome all of which are apparently the same thing and the relentlessness of it is dragging me to a new level I can't seem to get my head round.Any advice on what does and doesn't work would be big time appreciated.
Many thanks in advance Effie 8)