I saw the pain management specialist yesterday who has been treating me for 2 years now yesterday. During this time he has tried various procedures for neck, thoracic, lumbar and SI Joint pain. A bit of success here and there but nothing to significantly ease the constant unrelenting pain I feel.
The last two procedures were a lumbar radio frequenting Lesioning in November and a RACZ Catheter Targetted Adhesiolysis with epidural in December. Yesterday's appointment was to discuss what effect these had and what now?
Sadly, I had no benefit from these very tough procedures. He has now said he has no other options to try and in a case this complex the only realistic step is to refer on to Guys hospital for assessment for a set of spinal cord stimulators.
I expected him to say this, based on what he said before the last two procedures but it was very very hard to hear and I was really tearful leaving the hospital. It feels like a huge loss, the loss of hope that I will ever do so many of the things I have lost along the way. It's been hard saying to my family what the outcome was - they, of course, wanted 'the cure' for me.
I'll get my head around this, I have to, there's no realistic option but it is hard stuff. The letting go of hope that something the medics can do to ease this awful pain.
I know it will be a long wait to get to Guys and the process of assessment for SPC is lengthy and tough so I will focus on the things I have started recently to deal with what I CAN do, pacing better and the Mindulness practice.
Sorry for writing such a downbeat post - just feeling very sad today.
Hoping everyone having as comfortable a day as possible,