Hi.havent been on for ages.. Just had my 3 rd.. - Pain Concern

Pain Concern

38,218 members11,764 posts

Hi.havent been on for ages.. Just had my 3 rd..

louiseamos profile image
8 Replies

MRI scan in matter of months...bad back..osteoarthritis.. 3 level.. Was to have a op has a big t of disc came out.sat on my s1 .siatica.?worst pain.?any way again been fobbed to a 4 the rumo! Just had another scan with h die.. My pain is now in my elbows..any way...can't go bathroom for number 2?? Well it's wind and not lot..I am worried been 4 week now..was having leckin g.? Still am.?they said in last letter I've ligamentous hypertrophy too...out eles.give me..spondylosis??? But no one seems to bother???disc protrusion s on both sides ..OK so any one please..??getting bothered its in back...I've been on morpie 3 year..preapentin few month..I've a full draw of letters from spine guys..some GPS say everyone has some bad discs like mine..so spine guys wrote to them relatively advised for ones age..was to get injections..changed mind..not to have to have..had scan on hip.and lower back again???I am freckling..my fingers swell..my bones kill...I was told have fribo.. No don't think so..has no tender bits..but do have all simptons..was going to go private to see him who deals in m.e. fribo etc..but gp said to wait....I am worried..sick..when lie down get pins niddles in left hand..leg..feel I'll most days..help..advice to any one who can recognise my props... Discs out L3)4 L4)5 L5 s1.... Out...sorry so long haven't been here for ages..as needed time out....my face often swells too..shooting pains..eyes ears.elbows.....?????? X xxxxxx sorry but ??? Or took me off dizapam ..gave me this other stuff not ment to be addition..for m.s:-) :-) :-) :-) feel so alone right now.not lot of family.. Well none to care..told will only get worse..cut back on preapentin.. To see if helps me go toilet!!! But my pains now back...please if got 10 main for a mum.of:3 helpxps...feels like my tail bones INA different place like dropped when had my disc excursion ????

Written by
louiseamos profile image
louiseamos
To view profiles and participate in discussions please or .
8 Replies
Coastwalker profile image
Coastwalker

Have you had your 'thyroid bloods' checked Louiseamos ?

The symptoms of Fibro/MS that you mention are also thyroid symptoms, (hypothyroidism,) or even a B12 Deficiency or both. I recognize your symptoms as I too had them.

Has your Doctor done any of these blood tests already ? (see below,) If not, it might be an idea to ask for them.

Ask for a paper 'print out' of your last bloods (or new bloods) and 'their ranges' and post them up on here or on the Thyroid Uk site which is also on Health Unlocked for member's to read. Don't be fobbed off if your Doctor says your bloods are all OK and/or 'within range,' because even though your bloods are reading 'within range' you are actually not OK as you have all your symptoms. Thyroid blood tests are known to be 'not' accurate and people often fall through the net, leaving them with terrible symptoms, yet no treatment as their 'bloods' are showing they have nothing wrong with them.

Adding I had sciatica and tailbone pain and was also found to be vitamin D deficient, it was by chance I found out that vitamin D3 cured my Tailbone pain and Sciatica, but not on the dose my Doctor prescribed.(Not saying D3 will heal both yours as you mentioned you have discs out.)

PM me if you need to Louiseamos.

Good luck.

TSH

FT4

FT3

Vitamin B12

Vitamin D

Iron

Ferritin

Follate.

louiseamos profile image
louiseamos in reply to Coastwalker

Hi coastwalker.!!thank you very much for replaying... I've had none adobe bloods done. I knew for last 10:/year my white blood plates were very low.still are??? I feel very ill.. I haven't been toilet in weeks..scared to death..having morvacal not doing nowt.. I've cut my preapentin to see if f helps....it was helping with back now can't walk today...it feels like gp don't care..felt pain..migrane since 23...was to have a operation in April.. Thought the bit if disc had gone??had another scan July now both sides. So as well has discs out.got excursion discs.?joint pain god ..been in bearable.... Sick been fobbed off..like when they said ivce scoliosis???? Any advice gid no...I am killing....so you had tailbone sciatica pain..its the worst pain ever!!!!!.... My bits that are out most of moved. Both spine GPS have fobbed. Me off. Said need a rumotoligist I've been 3 god dam times..sorry..your right they need to look to see what's wrong..back end of April thought iI was during..felt very very I'll..? Can't take it..?I've my gp apt 5' the..going to go over everything.. Let you knew ...thanks..

Coastwalker profile image
Coastwalker

:O Oops! posted in the wrong box apologies louiseamos, see below.

balisethi profile image
balisethi

Take Lyrica three times a day 100-150 MG each Time. Take Vitamin B-Complex/Organic/ COQ10 once a day Take Magnesium/ORGANIC before Sleeping

louiseamos profile image
louiseamos in reply to balisethi

Thanks. Balisethi.?I just got put up tom100 preapentin.. 5 week ago..I am worried I've a blocking some were can't go tolite....so I've cut down..they helped so much. Got ouuta house!!now stuck on sofa. Cant go bathroom..do you have thus prop....???! They really helped too

Coastwalker profile image
Coastwalker

When you go to your appointment on the 5th louiseamos remember to ask for a full thyroid and vitamins test too. (The blood tests I listed for you.)

I had Fibromyalgia and CFS pains (chronic bone, joint, hips and leg pains, pins and needles in hands and fingers, electric shocks every few minutes all over, sciatica, tiredness, brain fog, dry skin, coldness etc., but once given thyroid replacement pills my all over pains, brain fog etc., just dropped away within a couple of days, it was most unbelievable.

Fibromyalgia/Ms and CFS can sometimes be just 'under diagnosed' or 'under treated' hypothyroidism, also known as an 'under-active thyroid.'

X

louiseamos profile image
louiseamos in reply to Coastwalker

Thanks coast walker good name..I am going nuts....I am going private to see a secilist in chronic disease. M.e fribo etc..would be may next year if gp will sent me..or December if I pay.they told me before I've fribo but no tenter points so??????

Coastwalker profile image
Coastwalker in reply to louiseamos

You need to put 'your story' out on - Health Unlocked's - ('Thyroid UK' ) louiseamos,

(go up to My Communities above on the green bar, if you don't already know.)

Thyroid UK has stories like yours everyday, people with thyroid problems and/or with CFS (Cronic fatigue Syndrome,) ME and Fibromyalgia and many are learning how to either cure themselves or cure themselves with the help of their Doctors and how to go about it and which bloods to ask for and how to understand your blood results also.

Chronic Fatigue (CFS,) ME and Fibro are mostly Thyroid connected due to the bloods reading 'within range' so Doctors think there is nothing wrong with you, yet you are still left with all your awful symptoms. Members on TUK learn how to get ourselves over the next hurdles of getting ourselves well again, even if the Doctors loose interest. You can easily go round in circles not getting anywhere.

Do take a peek at 'Thyroid UK' on Health Unlocked louiseamos, you have nothing to loose.

Also look on the Thyroid UK's own website 'Thyroid UK' where there are good explanations about why Thyroid, CFs, ME and Fibro Patients get missed by their blood results and then dismissed by Doctors and what to do about it to get yourself well again.

You may also like...

Inversion tables for degenerative disc desease

week. From MRI scan my back specialist said \\"it's your spine & you have 5 worn out discs, -...

Any advice would be greatly appreciated

am looking for any advice or tips to manage 24/7 pain. I fell and damaged my back back in late...

Nerve block not working

new to this site and wondered if any of you have had experience of pain down your legs and had a...

spinal cord stimulator

Please excuse if I make any spelling mistakes or miss out any words. I had back surgery about 9...

Did I act appropriately - or was I just reacting to my pain?

A dilemma? One effect of my long term chronic pain is the inability to stand for too long, in a...