I have a herniated disc in my lower spine, spondylosis, severe sciatica, pins and needles, severe bladder incontinence, and debilitating muscle spasms in my back. On a bad day i can barely move, on my very best day i hobble around in pain trying to get on with things. I have three children, the youngest being five, and have been struggling with everyday tasks since November, although my spine has been bad on and off for many years. This condition is now chronic, and i saw a neurologist last month, who, although sympathetic, stated he could do nothing to ease my pain, and sent me for another MRI (4 weeks this Thursday), the results of which I have not received.
I am doing all I can to help myself- stretching exercises, over the counter pain killers, walking stick and perch seat etc. and i am trying to stay positive. But last week i went to see the GP again for better pain relief and was given Amytripiline which i could not tolerate. i have repeatedly asked for a Pain Clinic referral, a Continence Advice referral and a Physio referral. GP is waiting for my latest results and i dont understand why. Whatever my scans show, i am suffering and need support. I feel very awkward asking again and again and Im terrified of becoming a nuisance, after reading about people who have been removed from GP lists after complaining.
Not to mention the fact that as I have been trying to increase my previous full time position from zero hours to five a week (so proud of that....pathetic eh?) we are reduced to pretty much poverty. Ive applied for PIP months ago, no idea whats happening there as ive heard nothing. After my one five hour shift i am literally crippled and in agony, there has to be something to help.
I have an OT coming today (whom i rang myself) to assess me for some equipment to help, and that feels like progress; but how can I make it clearer to my GP I NEED pain relief and support? I try to wait patiently, but my life, and that of my family who have effectively lost mummy in all but spirit, is so MISERABLE. Does anyone have any suggestions as to how i can make my GP understand without risking being told to get lost?