After experiencing your first episode of Pain... - Pain Concern
After experiencing your first episode of Pain, how long was it before you got the appropriate treatment? Comments please.
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I still have not received proper treatment i have been thru countless medications and doctors.. i stopped going to the the doctor after year of it because they kept passing me off to thier co workers which is ridiculous. i finall yfound a doctor that beleives me. But since i have no insurance its hard to get the blood test n procedures done
I am still in the 'experimental' stage with my treatment for the pain of peripheral neuropathy. I was finally referred to a pain clinic over 18 months after the symptoms first appeared and have been given Duloxetine. However, there is minimal impact on the pain and I am returning at the end of October.
You are right when you say "experimental". The whole process of getting adequate pain relief and being able to manage it feels like one long experiment. I think there is still so much that is unknown about pain, and so many factors that impact on it which vary from individual to individual. There are also a lot of medics and allied health practitioners who are convinced they have the answer - sometimes with good reason - and as patients we persue these treatments, or give up, or have to wait months for follow up appointments.
teadrinker
Here Here. And so it goes on. I feel like like a hamster in a wheel.
so right teadrinker and nedd - went to (2nd) neurologist yesterday and he recommended Lignocaine infusion - 'might work' were his words. I had written a list of my symptoms but he didn't even look at them and asked what my main symptom was - aargh! I felt like poking him in the eye! I have had this now for nearly 2 years and they are no nearer. I have been put on Duloxetene but my depression has returned in buckets so I am off to the GP (again) to try to sort out my meds. Signed: a very depairing person
I was initially offered NHS physio but there was a 3 week waiting list. I took myself to a chiropractor because I needed treatment straight away.
I had to see a chiro privately who then referred me to a specialist in the nhs *before* the nhs even ackolwegded I was in pain for 10 years... :/ Chiro all the way!
It depends on how you define 'appropriate'.
I answered 1-4 weeks because I was prescribed an evidence-based medicine (1st line treatment in NICE guidelines) within a month of my neuropathic pain flaring up, which worked to a reasonable extent. However it has taken me three years to find the best combination of medication so far (though it's nowhere near perfect but it is neuropathic pain after all!).
I am on appropriate treatment for my fibro - currently have the options of Solpadeine Max, Syndol, and Co-Codamol 30:500 for the pain, dependent on severity, and am taking amitriptyline. However, the pain persists, so it's appropriate, but maybe not sufficient? Or maybe nothing is sufficient, short of a bullet between the eyes!
Sara xx
Appropriate but not sufficient. Thank you for articulating exactly how I feel. We have a saying in our house "it's a lump it job"! But your suggestion does have a certain sort of appeal on some days. I think we have all developed hardened nails fit for clinging on purposes. I might go to a nail bar and have mine painted bright red.
I asked for my GP to ring me, this was on a friday, she rang me at 7pm and I told her how I was feeling, she said straight away that she needed to see me the following day, which was a Saturday, after examining me and asking questions, she said she was 98% sure that I had Fibromyalgia, and referred me to a Rheumatologist, who I saw 3 days later, he did the trigger point tests and said I had severe fybromyalgia, and that he would refer me on to a course run by the Hospital. I saw my GP within the following week where she started my Rx for my symptoms.
I was 23.. Now 38.. If can read my posts..you would understand
It took me 10 years before they believed it was real, and I finally got to see a pain clinic within that year.
Since then, nothing. So not sure if that counts as 3+ years or never...
Only because I went alternative, was seen the same day. Had to wait a couple of days as it was Christmas to get X-rays and start treatment properly. NHS offered me physio but there was a 3 month waiting list.
It seems I've had pain since I was a baby . My mum said she'd do everything to make me comfy n wondered why now n then I'd cry n cry. It wasn't until I could touch my legs to show where the pain was. Went to York hill Hospital for yrs n they put it down to growing pains !!! I'm 53 n still growing lol . I've got Hyper Mobility Syndrome n my 2 daughters n my grandson also have it. There is hope especially with dislocations as myself n my eldest daughter whose 32 haven't had kneecap dislocations for yrs now but still have experience of excruciating pain. My youngest has had Op 3yrs ago n she's nearly 16 now. The recovery period seemed to last for years n she won't accept Op on her other kneecap. Seems my youngest daughter has it worse but we didn't kno wat it was wen myself n my eldest suffered frm dislocation of our kneecaps. My dad just used to hold my leg n pull it back in place,it was sore but it helped. Good luck to all sufferers! !! Peace to u all 
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