I was wondering if anyone has had a denosumab injection for Pagets. I found it impossible to take Bisphonates tablets, they made every joint in my body painful, so much so i could hardly walk at times, and I had to stop taking them and wait nearly 2 weeks for the effects to wear off.
Last September I was sent to see an Endocrinologist at the QE hospital in Birmingham. I had the injection in December, just before Christmas, and it's amazing. I have had no pain whatsoever in the last almost 9 months. I am seeing my endocrinologist in November, they do not know how long the injection will last, and if I get the symptoms back I have to get in touch. Has anyone else has a good reaction?