fussydi19 days ago
Are there any local support groups near Riverside, CA 92504 for Paget's Disease of the bone. ty
Hello I am Marieeve
marieevea month ago
I had Zoledronic Acid infusion, 25 July/17.
I have not felt well ever since. At the moment I am getting very bad back pain from the waist up....
9 Replies1 Like
My ten year fight with Paget's
Bart---No12 months ago
It's a first post for me. I have Paget's in my right femur with the complication of micro stress fractures. The consultant at the time recom...
5 Replies3 Likes
Pantoe3 months ago
Happy Christmas all : )
The reclast has helped me
TSanders022519603 months ago
Since the infusion on Nov 2nd I have been feeling better, yes I can tell where the pain is in my body but I am not getting the full force of...
2 Replies1 Like
My first Reclast treatment
TSanders022519604 months ago
Had the reclast Nov 2 last Thursday and am getting used to the difference. I have no pain, its a strange sensation, I can tell where the pai...
10 Replies2 Likes
Effective treatment for Paget's disease of bone
PagetsSupport5 months ago
Zoledronate has been repeatedly shown to give excellent control of overactive bone cells in Paget's Disease of Bone and is also effective fo...
3 Replies1 Like
treatment for Pagets?
london12345 months agoPOPULAR
Having read the comments on treatment for Pagets with Zoledronic Acid, I am not convinced that any- one knows of a treatment--it seems to ...
23 Replies1 Like
Help with Pagettes
jimmym5 months ago
Hi my doctor has givin me Solpadol he says that is the best pain killer for the pagettes the pain never goes away and as its in my big toe I...
Learn about Paget's
To learn about Paget's disease, please see the Paget Association's website (the only UK charity to focus solely on Paget's disease of Bone)....
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marieeve7 months ago
Hello, my name is Marie , I am new to this. (80 years of age)
I have recently been told that I have Paget's Disease.
To be honest I did not ev...
12 Replies1 Like
Here I am a few years later from my last post
TSanders0225196010 months ago
I was first diagnosed with Pagets disease in 2010 seven years later I feel like I still don't have enough information. I am having pain in m...
Hiddena year ago
Iam still worrying about the side effects of zolondronic acid infusion recommended. Can anyone offer any alternatives,and it seems no one ...
Advice and support
PagetsSupport2 years ago
The Paget’s Association, a UK charity, has provided this community forum on HealthUnlocked for those affected by Paget's Disease of Bone to ...
Moggie2 years ago
My mum is 84 and has Paget's disease of the head, which has lead to profound deafness. Paget's runs throughout her family, from her ...
7 Replies1 Like
Paget's Association: Information, Support & Helpline
This Paget's forum via HealthUnlocked is for anyone with an interest in Paget's disease to be able to discuss Paget's matters. The Paget's A...
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Paget's disease and trigeminal neuralgia
healthunlocking2 years ago
I have a aunt with Paget's disease on the rear, right side of her skull. After a bisphosphonate infusion 5 years ago, the condition has r...
Diagnosis of Pagets Disease
Tiasanders2 years ago
I was first told in June of 2010 that I had Pagets disease in my right hip and that it was deformed. I was having alot of problems with my r...
Paget's Association Centres of Excellence
The Paget’s Association, the only charity in the UK dedicated to Paget’s Disease of Bone, is keen to improve patient access to appropriate s...
PagetsSupport3 years ago
If you haven’t already, please do consider becoming a member of The Paget’s Association, a registered charity and the only UK charity to foc...
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Pain after tooth extraction
60sSarah3 years ago
Desperately looking for advice! Had a tooth pulled out on 5th Feb and still get toothache and headache everyday. I also have osteoporosis a...
Free Paget's Newsletter: register free online paget.org.uk
This Feb edition is out soon: Information regarding development of new UK guidelin...
Free Paget's Information Days
Derby & Peterborough
Join us for one of our free Information Days for everything you ever wanted to know about Paget’s disease in one place! ...
Moggie3 years ago
Can I ask a quick question regarding Paget's and Vitd as I am taking my mum to the doctors on Thursday to request some bloods and want to kn...
Paget's Information Days
Look out for new venues & dates of our Paget's Information Days in our Paget's newsletter. Register free online to receive your copy (quarte...
Paget's specialist in the US
Theresefmichael3 years ago
Hello, can anybody recommend a Paget's specialist in the US please? I was diagnosed in the UK but moving now to America. Thanks
My orthopedic dr. tells me there is a special Dr. who treats pagets, can you give me that name?
Annahebl4 years ago
Help the Paget's Association raise awareness of Paget's Disease
PagetsSupport4 years ago
Find the Paget’s Association on Facebook facebook.com/PagetsAssociation
Follow us on Twitter twitter.com/PagetsDisease
Come to a Pag...
Recommended Vitamin Supplements.
300305calum4 years ago
Iam an active 44 year old male with Pagets in my right shin. I've had the infusion, which helped with the discomfort, and has re...
Can anybody recommend a Paget's specialist in West London? My local hospital is the West Middlesex.
Fixerman4 years ago
Start a Community