CuriousResearchera month ago
Hi, I'm new here and I've been exploring my family tree which has given me a couple of things which I hope somebody here can help with - apo...
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TSanders022519602 months ago
have been diagnosed with Hyperparathyrodism and now wondering if this caused the pagets disease. I feel like the docs have not been very hel...
The 1st Ever Paget's Day!
PagetsSupport2 months ago
The first ever Paget's Awareness Day is taking place on the 11th January 2019! Take part by entering our competition or by wearing Blue and ...
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Buddy5773 months ago
Would you suggest taking the infusion for the paget’s disease ?
No help from gp
GrandadH3 months ago
Hi I’m new to this in 2009 the hospital thought I had Paget’s disease of the bone in my right leg which was not diagnosed properly until 201...
Do you need Support?
PagetsSupport3 months ago
Do you need information, support or advice regarding Paget’s Disease? The Paget's Association can help. Please email email@example.com
Lancashirelass078 months ago
Iam going for a stress angiogram next week. Am very worried , any advice.
Have had pains in between shoulder blades and breathless when mowi...
1 Reply1 Like
ECG STRESS TEST
Have just been told by my GP. That I need a stress ECG test. Am now worried about it .any one had one? Think I may have angina.
What happens ...
angelwhip8 months ago
i have just been told that i have pagets of the bone. Started i guess from the car accident when, i had my femur, smashed up at 16, im not 6...
Resently diagnosed with PD in skull
Krispet9 months ago
In january I was diagnosed with PD in skull. I am 45 years old. Had zolodronic infusion 2 Month ago and still feels a strange feeling in...
Paget's since 2004
JojoDee9 months ago
I have probably had Paget's in my right femur since 2004 but went undiagnosed until 2010 when it was found by chance on an Xray taken of my ...
1 Reply2 Likes
fussydi9 months ago
Are there any local support groups near Riverside, CA 92504 for Paget's Disease of the bone. ty
Hello I am Marieeve
marieeve10 months ago
I had Zoledronic Acid infusion, 25 July/17.
I have not felt well ever since. At the moment I am getting very bad back pain from the waist up....
10 Replies1 Like
My ten year fight with Paget's
Bart---No110 months ago
It's a first post for me. I have Paget's in my right femur with the complication of micro stress fractures. The consultant at the time recom...
5 Replies3 Likes
Pantoea year ago
Happy Christmas all : )
The reclast has helped me
TSanders02251960a year ago
Since the infusion on Nov 2nd I have been feeling better, yes I can tell where the pain is in my body but I am not getting the full force of...
2 Replies1 Like
My first Reclast treatment
Had the reclast Nov 2 last Thursday and am getting used to the difference. I have no pain, its a strange sensation, I can tell where the pai...
10 Replies2 Likes
Effective treatment for Paget's disease of bone
PagetsSupporta year ago
Zoledronate has been repeatedly shown to give excellent control of overactive bone cells in Paget's Disease of Bone and is also effective fo...
3 Replies1 Like
treatment for Pagets?
london1234a year agoPOPULAR
Having read the comments on treatment for Pagets with Zoledronic Acid, I am not convinced that any- one knows of a treatment--it seems to ...
23 Replies1 Like
Help with Pagettes
jimmyma year ago
Hi my doctor has givin me Solpadol he says that is the best pain killer for the pagettes the pain never goes away and as its in my big toe I...
Learn about Paget's
To learn about Paget's disease, please see the Paget Association's website (the only UK charity to focus solely on Paget's disease of Bone)....
marieevea year ago
Hello, my name is Marie , I am new to this. (80 years of age)
I have recently been told that I have Paget's Disease.
To be honest I did not ev...
12 Replies1 Like
Here I am a few years later from my last post
TSanders022519602 years ago
I was first diagnosed with Pagets disease in 2010 seven years later I feel like I still don't have enough information. I am having pain in m...
Hidden2 years ago
Iam still worrying about the side effects of zolondronic acid infusion recommended. Can anyone offer any alternatives,and it seems no one ...
Advice and support
PagetsSupport2 years ago
The Paget’s Association, a UK charity, has provided this community forum on HealthUnlocked for those affected by Paget's Disease of Bone to ...
Moggie3 years ago
My mum is 84 and has Paget's disease of the head, which has lead to profound deafness. Paget's runs throughout her family, from her ...
7 Replies1 Like
Paget's Association: Information, Support & Helpline
PagetsSupport3 years ago
This Paget's forum via HealthUnlocked is for anyone with an interest in Paget's disease to be able to discuss Paget's matters. The Paget's A...
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Paget's disease and trigeminal neuralgia
Hidden3 years ago
I have a aunt with Paget's disease on the rear, right side of her skull. After a bisphosphonate infusion 5 years ago, the condition has r...
Diagnosis of Pagets Disease
Tiasanders3 years ago
I was first told in June of 2010 that I had Pagets disease in my right hip and that it was deformed. I was having alot of problems with my r...
Paget's Association Centres of Excellence
The Paget’s Association, the only charity in the UK dedicated to Paget’s Disease of Bone, is keen to improve patient access to appropriate s...
Start a Community