infusion: Would you suggest taking the... - Paget’s Support

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infusion

Buddy577 profile image
11 Replies

Would you suggest taking the infusion for the paget’s disease ?

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Buddy577 profile image
Buddy577
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11 Replies
Kuifje profile image
Kuifje

Hi Buddy I first had the infusion age 50 in 1994 for Pagets in my tibia. (I am led to believe that I was the first person in South Africa to receive it). I went into hospital on crutches, and came out almost running. This lasted for 18.5 years when I the Pagets started up again, so I immediately saw my specialist and requested another infusion. Although my medical aid would not pay for it I was prepared to dig into my savings to pay the huge bill - but it is worth it as it gave me immediate relief with no side effects. I am now 74, still running my B&B and very active.

takka profile image
takka

If you have had a scan for your pagets and your consultant suggests an infusion then yes, , as the scan may show your pagets to be active...or a blood test......may show your pagets to be active ...evan without symptoms... I would recommend an infusion , it all depends on the level of activity etc of your pagets, .....

Pantoe profile image
Pantoe

Yes, it worked very well for me, although I had 3 infusions over 3 years.

Buddy577 profile image
Buddy577

I like to think everyone and this website with the information that was given to me about getting a infusion you all was so correct I am doing fine in fact I am better thank U all

Pantoe profile image
Pantoe in reply to Buddy577

Great news and Happy Christmas to you.

Buddy577 profile image
Buddy577 in reply to Pantoe

Thank you and Merry Christmas and happy new year

Mandy5 profile image
Mandy5 in reply to Buddy577

Lovely to hear you are doing well. Hope the effects of the infusion are long-lasting for you. My husband is also doing really well after his :)

takka profile image
takka in reply to Buddy577

Brillisnt

Buddy577 profile image
Buddy577

Thank you and Merry Christmas and happy new year

Kuifje profile image
Kuifje

So pleased Buddy. Happy new year, and many more

takka profile image
takka

Great to hear that you are doing well