New to all of this:) : Hello Everyone my name is... - Fight MPN

Fight MPN

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New to all of this:)

AFrost2 profile image
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Hello Everyone my name is Aimee and I’m from the US. My Hematologist suspects that I have PV and I’m in the testing faze of it currently. I also have hereditary Hemochromatosis and was diagnosed with that in 2016. Any help or guidance would be greatly appreciated.

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AFrost2
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Johnsb profile image
Johnsb

I have PV, JAK2+ and have been on meds for a year now. My hematologist likes my ferritin level to be at or below anemic levels. I have good control on 500 mg Hydroxyurea and a blood draw about every 6-8 weeks.

Keep us up to date on your prognosis so we can help!

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