New to mpn/pv

[Poogie49]

I was just diagnosed with mpn/pv. I had phlebotomy last week. I have not had any symptom relief, which numbet 1 is a constant headache some have turned to migraines, low grade fever and pain under my left ribcage. What could it mean to still have these symptoms? Please help

[Kiturah]

All I can say is it took me around 6 weeks before similar symptoms subsided for me. I was getting phlebotomy weekly and on hydroxyurea.

[gabkad in reply to Kiturah]

Hi Kiturah,

I'm over from the thyroid forum. That's my human problem.

Just would like to ask you about PV. It's my cat. A rare problem. What side effects do you get from the hydroxyurea and how do you deal with them? I hope you don't mind even though it's about my Eddie. He's had blood removed today and started on hydroxyurea. Coming home from the veterinary emergency hospital tomorrow.

(I've got anti-emetic for cats at home already because Scipi gets pancreatitis once a year. And an anti-histamine that stimulates appetite. Will be asking if either of these will help.)

I don't know what to expect. Did you sense of taste alter from the chemo drug?

[Kiturah in reply to gabkad]

For the first two years I experienced no recognizable problems, but then began itching uncontrollably. I am still not sure if it was the illness, the treatment or the combination.

[gabkad in reply to Kiturah]

Thanks. I hope the itching has been helped somehow and you are better now.

[Kiturah]

oh yeah, different med no itching