So, for three or four years I suffered greatly with a burning pain on my big toes. Mostly one or the other, centering on a spot just about the size of a dime, on the top, right behind the toenail. Like somebody pouring acid on it, or touching it with a white-hot poker. Unbearable. Can't touch that spot. Pain on the scale of 8-10. Unbearable! Twisting my body, and throwing my legs around, and making noise...sounds like, "Ahhh, uuuhg, owwww!" Four, or five, or six hours almost every night. Neurontin, Hydrocodone, Predisone, Temazapam, and still no relief. Finally alcohol. Glass of wine, a beer, and I can sleep maybe from 4-5am 'til 7. I begged seven different doctors, and the the cancer, nerve, and pain clinics at Stanford for help. I fantasized about having it amputated. By a surgeon, or a hatchet, or a bullet. But they found a pinched nerve in my spine, and then my MPN disease was diagnosed. Cutting it off wouldn't have stopped the pain. But perhaps it was a symptom of my high platelet count. It's been a year now on 1000 mg of HU. No more attacks during that time. And no more abulance trips to the hospital for ischemic colitis. Some surgeries. And now on Hydrea .'1000mg/day and no more symptoms Keeping my fingers crossed?. It was the ET?p
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