multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma

[chen5631867]

Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery.

Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?

She already has more than forty cycles of maintenance chemotherapy without stem cell transplant (SCT) by using Velcade around fifty five months. She keeps asking me when she does not need any treatment after almost all results of blood work and MRI show in normal range.

Do you have Any suggestion?

[Abinet1]

Would love to know the answer as I just started treatment and am on my 4th Cycle and the blood results are positive. When does it stop?l

[chen5631867 in reply to Abinet1]

Well, If It is working good, you do not want to stop your maintenance chemotherapy. Most of Myeloma Specialists think that cancer cells of myeloma will come back soon or later after having experiences of MM treatments so many years.

[Abinet1 in reply to chen5631867]

Thank you what is exactly maintenance therapy. Do you get a break from Chemotherapy?

[chen5631867 in reply to Abinet1]

We have a break during Christmas and New Year Holiday Season.

[Abinet1]

Thank you what is exactly maintenance therapy?

[chen5631867 in reply to Abinet1]

In standard procedure, MM's patients are treated by 4 or 6 or 8 cycles of VRD Regimens, then have a SCT by using Melphalan andCyclophosphamide ( Cytoxan), and do maintenance therapy by using Velcade in two week off and three weeks off, or Revlimid in low dose either 5mg or 10mg or higher in three week or two week on and one week off, or other medicines. You shall ask your oncologist opinion or find these medical information from International Myeloma Foundation(IMF) and Multiple Myeloma Research Foundation (MMRF).

[Abinet1 in reply to chen5631867]

Thank you so much that was v useful info for me .

[chen5631867 in reply to Abinet1]

You are very welcome.

God bless you.

[Abinet1 in reply to chen5631867]

God Bless you too thank you 🙏

[chen5631867 in reply to Abinet1]

She has taken subcutaneous Velcade shots with two weeks on and three off by performing maintenance therapy since 2013.

In beginning, she only feel numbs on tongue almost over passing four years, but has extreme pains from abdomen to below neck with having both Cymbalta and gabapentin . Before she finished over sixty cycles of the maintenance therapy over eight year, Now, Myeloma expert Dr. Joseph Mikhael, the IMF as Chief Medical Officer, announce she is cured with VRD two years and Velcade maintenance chemotherapy six years after visiting IMF(International Myeloma Foundation) 2018 LA supporting group meeting in summer.