Hi, I have just joined as my mum (she is 83 years old ) was recently diagnosed with multiple myeloma she started treatment .....after 4 days of malphalan and 2 injections of velcade she became very poorly and was admitted to hospital where she came down with c.diff she has now decided that she does not want to continue with her chemo treatment and that quality of life was far more important than quantity so here is my question what happens with the progression of myeloma ?? the hospital have virtually just left her alone since she came home from the hospital no more appointments no information on where we go from here, I am so saddened by the lack of information or how we as a family are going to go forward and support her with whatever is likely to happen to her now , she is tired all the time is reluctant to go out and infact hasnt gone out once in the 2 weeks since I brought her home from the hospital , I had home care arranged for her but this is now going to stop as she can still wash and dress herself all be it that it takes her most of the day to get washed and dressed I am doing her shopping for her ,she can get something to eat although this tends to be mainly snack type things and ready meals ....... she keeps saying that once the chemo is out of her body then she will feel better I think she may have forgotten how tired she was before she was diagnosed is tiredness and fatigue a big part of myeloma ???
Any information or advice would be very gratefully appreciated
Many thanks in advance