Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be honest, I only partially understand what all that means. In the past, I have been teated with Revlimid, Velcade, Kyprolis, Pomalyst and the ever popular, Dexamethasone. Currently, I am in a clinical trial taking Panobinostat, MLN9708 and Dex. We hope to get my numbers down so that I can proceed to a RIC Allogeneic stem cell transplant.
I would be happy to share my experiences with any newly diagnosed patients who might need guidance or old timers like me who just want to share ideas.