Venclexta: Hi has anyone had any... - CLL America Support

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Venclexta

CattieAnne profile image
7 Replies

Hi has anyone had any experince with this drug?

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CattieAnne profile image
CattieAnne
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7 Replies
lankisterguy profile image
lankisterguy

Hi CattieAnne,

I have been on Venclexta (Venetoclax) since June 2016 and my CLL is in complete remission with no detectable disease or side effects.

BTW- the group you posted to CLL America from Patient Power is very small and has only a few posts each week.

There is a much larger and far more active group called CLL Support Association and if you click this link it will take you to a page that has 140 postings and replies about Venclexta

healthunlocked.com/search/v...

If you wish you can "follow" both groups and get a daily email digest of everything posted on both groups.

If you don't find enough information at CLL SA, then post your question there and i expect you will get many more responses.

Len

CattieAnne profile image
CattieAnne in reply to lankisterguy

Thank you my friend!

lawyermordy profile image
lawyermordy

Hi CattieAnne, I’ve been on Venclexta since February 2017 and I am in complete remission with no detectable disease in the bone marrow or blood. The side effects are minimal and the recent studies show good results. Good luck

CattieAnne profile image
CattieAnne in reply to lawyermordy

Thank you my friend!

winterwild profile image
winterwild

Hi CattieAnne,

I have been on Venetoclax for the last 6 weeks. My Neutraphils and Platelets have been low but they weren't great when I started. I have stayed on 200mg for a few weeks as I have had a sore throat, nose bleeds and low bloods. White Cell count is now normal. So far I am pretty happy with this drug but I have nearly exhausted all other treatments. WW

Rod71 profile image
Rod71

Hey I’ve been on it since November 7th 2017 its better then chemo I tell you that the introduction to it was the hardest but I have no complaints no side effects for me my counts have been normal good stuff

dongra profile image
dongra

Been on it for about a year, working great. I was switched to this because of reaction to another med for the CLL.