Beginning my clinical trial

[Ninagram]

I have been on watch and wait since 2008 and the last 6 months my wbc is increasing at each appointment. I have been accepted into a trial with I brutinin and ventolax. A bit anxious but looking forward to getting some energy back. Will keep you posted on my journey.

[Spacee]

Do you have any mutations meaning have they done the FISH testing.

Prayers,

Linda (Spacee)

[Ninagram in reply to Spacee]

They did the fish testing. I havedeletion13. Where are you with your diagnosis

[Spacee in reply to Ninagram]

It’s my hubby with the CLL. He is 17p deletion which his doc says “trumps all others”. So far no symptoms but being tested every three months. The meds you are taking might be the ones suitable for hubby.

[Anruiya]

How is your trial of I+V going? My Dad's doctor is recommending he start this trail. He is P53 mutated. WB at over 270 and his other counts are dropping. I'm very interested in how you are doing.

[Ninagram]

My trial is doing well. I have a bit more energy and my wbc was 230000 now it is 175000. No other side effects. Hope your dad does well. Good luck