I’m new here and not clear about the diagnosis given on my Flow Cytometry, which classified me with atypical CLL, Mantle Cell Lymphoma, and Marginal Zone Lymphoma. Nothing was detected on my CLL FISH panel or the Malt1 FISH probe.
My onc staged me at between 0-1 and I’m on W&W. At diagnosis 18 months ago my symptoms were night sweats, fatigue, sore around elbow/forearm, slightly swollen spleen, my wbc was 20, and my alc was 13,900.
My onc/hemo, who says he sees a lot of CLL patients, said “we’ll just call it CLL”. I’ve asked him at my last 2 visits about the MCL and the MZL, but I’ve yet to get an adequate explanation.
I understand MCL is much more aggressive than CLL or MZL, and this concerns me. I have bright CD45, dim-mod CD 19, mod-bright CD20, partial dim CD5, and no CD23 or CD38.
Is there a specific test I should ask my oncologist for that would further define what I have and where my concerns should be?