Hi all! Decided to get a physical when I turned 60 in July and I was diagnosed with stage 0-1 CLL. Will be getting results of genetic tests next week. No symptoms but doc believes I've had for almost 2 years (had elevated WBC count during emergency room visit). So scared at first but I've gotten so much info online and reading other patients journeys has helped me put this disease into perspective. I have 2 adult girls ages 27 and 30 ( one is getting married in a few months) and I just can't tell them. Thinking I should wait until I need treatment but I'm so undecided. Maybe someone can share how they told their children?
Also anyone with CLL in Milwaukee area? I really appreciate the support this provides.