I'm new to the site: I am 50, mother of... - CLL America Support

CLL America Support

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I'm new to the site

11 Replies

I am 50, mother of 2 sons. Diagnosed CLL almost 3 years ago. I'm in the watch and wait category, closely monitored every 3-4 months due to 17p deletion and P53 oncogenes. Looks like a nice site for support and information.

11 Replies
BCTexas profile image
BCTexas

Hi,

I have two sons of my own. I was diagnosed with CLL last September age 47 on W&W You will find everyone here is very supportive and friendly. I call this site my second family. 😎..

Best wishes,

BC

tclementi profile image
tclementi in reply to BCTexas

Thank you for the kind words!

mgh348 profile image
mgh348

Welcome! You will find lots of information and support here.

Maxine

mgh348 profile image
mgh348

Be sure to join the CLL Support Association here on HealthUnlocked to access lots of info and support.

tclementi profile image
tclementi in reply to mgh348

They are great as well! We do a lot of work with them and want to do more!

nkferg profile image
nkferg

Welcome, Have you seen a CLL specialist and had advanced genetic tests done?

Nathan

rdjusticedavis profile image
rdjusticedavis in reply to nkferg

Where do you find a CLL specialist, or how....??

nkferg profile image
nkferg in reply to rdjusticedavis

This is the list published by a CLL specialist. cll-nhl.com/p/cllnhl-doctor... . 17p puts the original poster at high risk, I would see a CLL specialist as soon as you get the chance. There are genetic tests beyond FISH that could potentially alter treatment plans. I would look at the list and see who is in your area. Call them and see if they take your insurance. I would then have your primary put in a referral for a second opinion. I can not speak for others, but if I was 17p I would probably move my care to a CLL specialist if I had one close by. The great news is that a lot of new drugs have just come out and are in trial that have been very effective CLL.

in reply to nkferg

Thanks for the info. I have already consulted with a CLL specialist due to my 17p. I will check out the link up you suggest for comparison.

in reply to nkferg

Yes I am followed by my regular hematologist as well as my CLL specialist.

tclementi profile image
tclementi

Hi there, we are glad you are here and know that you will have meaningful conversations with our other members. Be sure to watch our videos so that you are informed and empowered! Let me know if I can be of any further help!