New to CLL

New to CLL

Just given the diagnosis of CLL less than a week ago after I'd asked for a blood test because of persistent tiredness; a high lymphocyte count was found, I am now on Watch and Wait.

God has a sense of humour giving me a cancer which seems to involve so much maths and science to understand it as these were my worst subjects at school.

My greatest fear is getting dementia as my grandmother, and aunt had a vile end from it and my 93 year old mother is now dying in a care home from it.  With luck now with CLL, I shall be spared that. 

I will hope for a long watch and wait and make sure I savour and enjoy all the beauty of the world.

8 Replies

  • Saska,

    I completely understand where you are coming from, as it takes a while to wrap ones head around the concept of having cancer, and it is natural to take a fatalistic view. But on the other hand the CLL treatment landscape is filled with newly approved drugs and many more are in the pipeline. While CLL  is a serious and chronic condition, the chances of living a long and full life with it have never been better.

  • Thank you.

  • Hi Saska, Thanks for sharing your story. I love the picture you chose! Like kc1953 said, CLL is becoming more live-able with all the research and treatment options. Empower yourself by watching videos about this here- Sending you best wishes! -Theresa

  • Thank you, Theresa.  Yes there seem to be a lot of important developments in this field. As I said I am on Watch and wait and it could be 10 years.  Meanwhile I will set out to be positive and enjoy all that is good in life.

  • I'm so glad to hear that! Keep up the positive outlook and we will keep you posted on treatment and research news :) -Theresa

  • Thank you 🌺

  • Welcome to an exclusive club. I am sure that only special people like you and I have this problem. Just think of yourself as being special and that you are being looked after. Surround yourself with love and you will be able to rise above all the nasty stuff and the feelings of powerlessness that might occur. Good luck and let us know how you are getting along.

    I have my annual visit to my haemotologist next month, and I am thankful to say that now I am able to go there without the previous sleepless nights that I have had in the past. I have even bounced back from the total knee replacement that I had 15 weeks ago, and I really was not looking forward to that! Be kind to yourself.

    Best wishes


  • Hi Catmad1, thank you for your kind and positive reply.

    I hope you have good results at your Haematologist visit tomorrow .

    Blessings of all good,

    Saska- Jul

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