We've halfway through 2016! What have ... - CLL America Support

CLL America Support

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We've halfway through 2016! What have you done in 2016 to help yourself grow as a "Powerful Patient"?

tclementi8 years ago11 Voters

Please select all that apply:

Made more frequent appointments with my GP/cancer specialist Made lifestyle changes, like diet, exercise and stress reduction Sought out support through family, friends, support groupsRead and learned more about my illness Attended in-person events about my illness Considered/enrolled in a clinical trialOther (I'll explain more by leaving a comment)

1 Reply

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LynnB19478 years ago

As an ibrutinib patient of 2+ years, I am very interested in other options including clinical trials if ibrutinib loses its effectiveness. I did attend an in-person conference in October 2015, and I will again when the opportunity presents itself. I just saw my dr in June & the frequency of dr visits is changing from every 3 months to every 6 months, and CT scans from 6 months to 12 months.