Have you watched our ASH 2016 coverage?
tclementi2 years ago
Have you seen our Ask The Expert series?
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How do negative messages about CLL you read on the Internet affect you?
Do you know what second-generation CLL inhibitors are?
Have you ever had checkpoint inhibitors or another type of immunotherapy as part of your treatment?
Have you connected with other CLL patients or care partners either online or in-person?
Have you had a transplant as part of your CLL treatment?
Have you used Patient Power's clinical trial finder?
What would you like to see come from Patient Power in the upcoming year?
Have you ever had insurance, billing or hospitalization problems ? Let's talk about it in the comments section and through our blog post!
Who is your primary care partner?
Are you taking or interested in taking Venetoclax? Let us know & then find out about it's approval in this new video
How Can Researchers and Doctors Encourage More Patients to Enroll in Clinical Trials?
Have you ever considered or enrolled in a clinical trial?
We've halfway through 2016! What have you done in 2016 to help yourself grow as a "Powerful Patient"?
Pick your top 3 goals you'd like to see achieved through Moonshot.
How does your GP react to your concerns about issues that could be CLL-related? Tick any boxes that may apply & feel free to add further
Do you think pharma companies understand the effect the price of their cancer drugs have on patients and their families?
What was your greatest source of support when you were diagnosed with your CLL?
What do you do to deal with or help your CLL-related fatigue?
What topics would you like to see covered during future Facebook Live Q&A sessions?
How Do You "Eat Dessert First" aka living fully despite having cancer? Andrew recently blogged his answer here-http://bit.ly/1OpgBtn
Fatigue is common symptom with CLL that is poorly recognized by doctors. Please share your experiences via this poll plus comments.
tclementi2 years agoPOPULAR
What treatments, if any, have you had for your CLL? Feel free to expand in the comments
How long after your diagnosis did you receive treatment or are you on watch & wait? Feel free to leave a comment about what treatment(s)
Would you ever or have you ever participated in a clinical trial? Feel free to reply in order to expand on why you selected that answer.
How were you diagnosed with CLL? Feel free to reply to expand on your diagnosis experience.
Do you feel like your relationships have been impacted since your diagnosis?
aking902 years ago
Have you ever felt confused about the treatment you are receiving, or felt as if your physician was not making the right decision?
How do you (or your loved one) deal with CLL related fatigue? Feel free to comment any other ways you manage your fatigue.
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