Posts - My Ovacome | HealthUnlocked

My Ovacome

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Elahere

I have ovarian cancer since 10/2020. Have done all kinds of chemo plus radiation everything was good till this passes week. Had a pet scan and the cancer...

I have ovarian cancer since 10/2020. Have done all kinds of chemo plus radiation...

MyDogKalie

•2 days ago

4 Replies

Rising CA125

I had CT scan in February and it was clear however my CA125 is at 92 been slowly rising it worries me. Im getting bloods and CT scan every 3 months. Anyone...

I had CT scan in February and it was clear however my CA125 is at 92 been slowly...

0151tmac69

•2 days ago

5 Replies

Recurrence?im scared

I don't know where to start because I'm scared to death. I already made a post about my situation but I need to talk more about it with people who understand...

I don't know where to start because I'm scared to death. I already made a post ...

Belindajames

•2 days ago

2 Replies

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fallopian cancer return

hi everyone. After chemo, surgery and chemo, was cancer free we thought. But now it has return in the lymph nodes after 6 months and my dr wants to do carbo...

hi everyone. After chemo, surgery and chemo, was cancer free we thought. But n...

Jacquiemoo

•2 days ago

1 Reply

Caelyx/ carboplatin side effect retention of fluids

Dearest,Hope all good. Since i was in the hospital, 11 days for a bacteria in my porth-a-cath, my body did a huge retention of liquids in my feet and legs....

Dearest,Hope all good. Since i was in the hospital, 11 days for a bacteria in my...

Pumpkininja

•3 days ago

5 Replies

4th round chemo worse since surgery, started feeling sick & stomach pains 😫

Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had many side effects, I was fortunate that sickness/nausea wasn't one of them. 5...

Hello lovely ladies I had 3 rounds of chemo along with Avastin & although I had ...

Kazzh

•3 days ago

17 Replies

Hi is there any sucess stories of people who haven't had the BRAC 1or 2 gene thanks

Diagnosed Jan 2024

Molste

•4 days ago

9 Replies

Small hernia

I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago. I got over the surgery very quickly and have been very lucky with no...

I have Stage 3 low grade ovarian cancer and had debulking surgery 18 months ago...

Frinks

•4 days ago

11 Replies

Bevacizumab v Niraparib

I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with...

I've had chemo/debulking surgery/ chemo, and have just come to the end of the po...

LovemyJackRussell

•5 days ago

20 Replies

peewee

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? Not just highlights but tint as well I am 5 months on from chemo

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? ...

Reinbach

•5 days ago

3 Replies

New vlog/Dr Dr site - important statistic but not to do with OC survival

Ok. Everywhere I look I see people running the marathon, organising a campaign, going on TV, all to raise awareness for prostate cancer. But awareness of this...

Ok. Everywhere I look I see people running the marathon, organising a campaign, ...

candyapplegrey

•5 days ago

Be the first to reply

Covid-19 spring vaccination

what are peoples thoughts on the spring covid vaccination - to have or not to have?

what are peoples thoughts on the spring covid vaccination - to have or not to ha...

Balletchick12

•5 days ago

13 Replies

Liverpool Health and Wellbeing Day 27th April - a few spaces left

Good morning everyone. We have a few spaces remaining at our Liverpool Health and Wellbeing day if you would like to attend. The day will provide an...

Good morning everyone. We have a few spaces remaining at our Liverpool Health a...

OvacomeSupport

Partner•6 days ago

Be the first to reply

What's on at Ovacome next week? (week commencing Monday 22 April 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•6 days ago

Be the first to reply

Recurrence of borderline?

Hi everyone, a year ago I had TAH-BSO by laparotomy and my pathology was stage 1a seromucinous borderline ovarian tumour. I felt great after the surgery and...

Hi everyone, a year ago I had TAH-BSO by laparotomy and my pathology was stage 1...

Mothbag

•6 days ago

2 Replies

Update to a previous post I had about ultrasound and CT not being able to detect if it's a fibroid or a mass.

So this is what I had wrote a few days ago: I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it...

So this is what I had wrote a few days ago: I (post-menopausal 52 y/o) went in ...

starrynight5626

•6 days ago

32 Replies

Ovarian cancer vlog: Back to the Future, Part 1

Ok so here's the sugar to help the medicine go down, I hope. Usual high production values! I forgot to say that my Dad died in May 2020, mid-Covid, and I was...

Ok so here's the sugar to help the medicine go down, I hope. Usual high producti...

candyapplegrey

•7 days ago

6 Replies

Milestones

Morning all I don’t post much but do keep an eye and contribute where I can; however I did want to share a milestone with you. Yesterday marked five years...

Morning all I don’t post much but do keep an eye and contribute where I can; ho...

Yorkiepudd

•8 days ago

22 Replies

What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?

I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...

I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach...

starrynight5626

•8 days ago

38 Replies

Recurrence :(

Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4...

Hi ladies,I haven't posted on here for a while, but I've just found out that my ...

Kjpip

•9 days ago

41 Replies

Ascites

Hi did many of you ladies have ascites with stage 3 oc ,thanks in advance

Molste

•12 days ago

8 Replies

Still doing well.

Hi all you lovely ladies, I just want to give some encouragement to you all. It's now been 11 years since I was diagnosed with Stage 3C ovarian cancer. As you...

Hi all you lovely ladies, I just want to give some encouragement to you all. It'...

ZenaJ

•12 days ago

59 Replies

NGS panel

Hi Everyone , has anyone here done the NGS panel . My oncologist has asked me to do this and would be helpful to know if this is something new . I have already...

Hi Everyone , has anyone here done the NGS panel . My oncologist has asked me to...

Kjhere

•13 days ago

6 Replies

surgery before chemo

hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been determined to be surgery before chemo. My understanding was that chemo first was...

hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been de...

georgiageorgia182

•13 days ago

21 Replies

Anyone have side effects from omenectomy?

Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC...

Hi everyone, I’m after some advice. I’ve decided to have a preventative total h...

Hailun

•14 days ago

10 Replies

Bacteria in portcatheter

Dearest,After my 5 th round caelyx/ platinum yesterday was almost going home.My husband almost arriving to pick me up from hospital ...when i start with...

Dearest,After my 5 th round caelyx/ platinum yesterday was almost going home.My ...

Pumpkininja

•14 days ago

9 Replies

Ascites coming back,primary peritoneal

Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal...

Hi everyone. I was hoping I could ask for some information. For a bit of backgro...

SupportingmyMum

•14 days ago

1 Reply

When should chemo restart post interval debulking surgery?

Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to restart me on chemo now. Just wondered what experiences others have had in...

Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to ...

Kazzh

•14 days ago

19 Replies

conflict of opinion

So, following my last scan, the radiographer says progressive disease, MDT say stable. Any observations please or anyone had similar experience? Am on Avastin...

So, following my last scan, the radiographer says progressive disease, MDT say s...

Beaver54

•14 days ago

5 Replies

gemiciabine and hair loss

hi . Has anyone had Gemiciabine? I’ve been using a cold cap — but do you get hair loss with gemcitabine ? x x ❤️

hi . Has anyone had Gemiciabine? I’ve been using a cold cap — but do you get hai...

Lookingahead

•15 days ago

5 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Elahere

Rising CA125

Recurrence?im scared

fallopian cancer return

Caelyx/ carboplatin side effect retention of fluids

4th round chemo worse since surgery, started feeling sick & stomach pains 😫

Hi is there any sucess stories of people who haven't had the BRAC 1or 2 gene thanks

Small hernia

Bevacizumab v Niraparib

peewee

New vlog/Dr Dr site - important statistic but not to do with OC survival

Covid-19 spring vaccination

Liverpool Health and Wellbeing Day 27th April - a few spaces left

What's on at Ovacome next week? (week commencing Monday 22 April 2024)

Recurrence of borderline?

Update to a previous post I had about ultrasound and CT not being able to detect if it's a fibroid or a mass.

Ovarian cancer vlog: Back to the Future, Part 1

Milestones

What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?

Recurrence :(

Ascites

Still doing well.

NGS panel

surgery before chemo

Anyone have side effects from omenectomy?

Bacteria in portcatheter

Ascites coming back,primary peritoneal

When should chemo restart post interval debulking surgery?

conflict of opinion

gemiciabine and hair loss

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