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My Ovacome

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Bevacizumab v Niraparib

I've had chemo/debulking surgery/ chemo, and have just come to the end of the post surgery chemo. I've been told all along that I will continue with...

I've had chemo/debulking surgery/ chemo, and have just come to the end of the po...

LovemyJackRussell

•6 hours ago

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peewee

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? Not just highlights but tint as well I am 5 months on from chemo

hello is anyone on Rucaparib and if so do you know if it's ok to dye your hair? ...

Reinbach

•9 hours ago

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New vlog/Dr Dr site - important statistic but not to do with OC survival

Ok. Everywhere I look I see people running the marathon, organising a campaign, going on TV, all to raise awareness for prostate cancer. But awareness of this...

Ok. Everywhere I look I see people running the marathon, organising a campaign, ...

candyapplegrey

•11 hours ago

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Covid-19 spring vaccination

what are peoples thoughts on the spring covid vaccination - to have or not to have?

what are peoples thoughts on the spring covid vaccination - to have or not to ha...

Balletchick12

•13 hours ago

2 Replies

Liverpool Health and Wellbeing Day 27th April - a few spaces left

Good morning everyone. We have a few spaces remaining at our Liverpool Health and Wellbeing day if you would like to attend. The day will provide an...

Good morning everyone. We have a few spaces remaining at our Liverpool Health a...

OvacomeSupport

Partner•18 hours ago

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What's on at Ovacome next week? (week commencing Monday 22 April 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•20 hours ago

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Recurrence of borderline?

Hi everyone, a year ago I had TAH-BSO by laparotomy and my pathology was stage 1a seromucinous borderline ovarian tumour. I felt great after the surgery and...

Hi everyone, a year ago I had TAH-BSO by laparotomy and my pathology was stage 1...

Mothbag

•22 hours ago

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Update to a previous post I had about ultrasound and CT not being able to detect if it's a fibroid or a mass.

So this is what I had wrote a few days ago: I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it...

So this is what I had wrote a few days ago: I (post-menopausal 52 y/o) went in ...

starrynight5626

•1 day ago

31 Replies

Ovarian cancer vlog: Back to the Future, Part 1

Ok so here's the sugar to help the medicine go down, I hope. Usual high production values! I forgot to say that my Dad died in May 2020, mid-Covid, and I was...

Ok so here's the sugar to help the medicine go down, I hope. Usual high producti...

candyapplegrey

•2 days ago

6 Replies

Milestones

Morning all I don’t post much but do keep an eye and contribute where I can; however I did want to share a milestone with you. Yesterday marked five years...

Morning all I don’t post much but do keep an eye and contribute where I can; ho...

Yorkiepudd

•3 days ago

22 Replies

What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?

I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach pains. Doctor thought it was a ruptured appendix, but sent me for a CT scan to...

I (post-menopausal 52 y/o) went in to urgent care about a month ago with stomach...

starrynight5626

•4 days ago

35 Replies

Recurrence :(

Hi ladies,I haven't posted on here for a while, but I've just found out that my cancer has come back. I was initially diagnosed in October 2021 with stage 4...

Hi ladies,I haven't posted on here for a while, but I've just found out that my ...

Kjpip

•4 days ago

37 Replies

Ascites

Hi did many of you ladies have ascites with stage 3 oc ,thanks in advance

Molste

•7 days ago

8 Replies

Still doing well.

Hi all you lovely ladies, I just want to give some encouragement to you all. It's now been 11 years since I was diagnosed with Stage 3C ovarian cancer. As you...

Hi all you lovely ladies, I just want to give some encouragement to you all. It'...

ZenaJ

•8 days ago

59 Replies

NGS panel

Hi Everyone , has anyone here done the NGS panel . My oncologist has asked me to do this and would be helpful to know if this is something new . I have already...

Hi Everyone , has anyone here done the NGS panel . My oncologist has asked me to...

Kjhere

•8 days ago

6 Replies

surgery before chemo

hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been determined to be surgery before chemo. My understanding was that chemo first was...

hi all My mums been diagnosed stage 3 HGSC - and the treatment plan has been de...

georgiageorgia182

•8 days ago

21 Replies

Anyone have side effects from omenectomy?

Hi everyone, I’m after some advice. I’ve decided to have a preventative total hysterectomy with salpingo-oopherectomy (one ovary is already gone with my OC...

Hi everyone, I’m after some advice. I’ve decided to have a preventative total h...

Hailun

•9 days ago

10 Replies

Bacteria in portcatheter

Dearest,After my 5 th round caelyx/ platinum yesterday was almost going home.My husband almost arriving to pick me up from hospital ...when i start with...

Dearest,After my 5 th round caelyx/ platinum yesterday was almost going home.My ...

Pumpkininja

•9 days ago

9 Replies

Ascites coming back,primary peritoneal

Hi everyone. I was hoping I could ask for some information. For a bit of background, I am supporting my Mum (76) who was diagnosed with primary peritoneal...

Hi everyone. I was hoping I could ask for some information. For a bit of backgro...

SupportingmyMum

•9 days ago

1 Reply

When should chemo restart post interval debulking surgery?

Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to restart me on chemo now. Just wondered what experiences others have had in...

Hello ladies I am almost 5 weeks post surgery now and my consultant is happy to ...

Kazzh

•9 days ago

19 Replies

conflict of opinion

So, following my last scan, the radiographer says progressive disease, MDT say stable. Any observations please or anyone had similar experience? Am on Avastin...

So, following my last scan, the radiographer says progressive disease, MDT say s...

Beaver54

•10 days ago

5 Replies

gemiciabine and hair loss

hi . Has anyone had Gemiciabine? I’ve been using a cold cap — but do you get hair loss with gemcitabine ? x x ❤️

hi . Has anyone had Gemiciabine? I’ve been using a cold cap — but do you get hai...

Lookingahead

•10 days ago

5 Replies

peewee

I have been on Rucaparib for month I have had to reduce my pills to half I am experiencing itchy and prickly skin and my mouth and tongue are very sore. Has...

I have been on Rucaparib for month I have had to reduce my pills to half I am ex...

Reinbach

•10 days ago

3 Replies

Mums recurrence

My mum found out on Friday her cancer has recurred after 11 months. She will start 2nd line treatment of Carboplatin and Caelyx soon, 6 sessions, 1 every four...

My mum found out on Friday her cancer has recurred after 11 months. She will sta...

Shorty18

•11 days ago

2 Replies

Hi can you take Avistan longer than the 22 cycles if it's working?

Hi can you take avistan longer than the 22 cycles if it's working?

Molste

•11 days ago

6 Replies

tired

Hi not been around for a while but I need some advice as you have all helped me before , finished chemo last September then unfortunately had sepsis in...

Hi not been around for a while but I need some advice as you have all helped me ...

Cazy1010

•12 days ago

14 Replies

Finishing Olaparib PARP after 2 years

Hi All I've been on Olaparib for the past 2 years following frontline chemo (NED) for ovarian cancer (stage 3) and I'm due to finish in May. In one way I'm...

Hi All I've been on Olaparib for the past 2 years following frontline chemo (...

Carpediem68

•13 days ago

25 Replies

CA125 on the up

Hi, diagnosed 6 years ago with stage 4, had treatment, recurrence 3 1/2 years ago, on olaparib since end of that round of treatment. Bloods every 2 months and...

Hi, diagnosed 6 years ago with stage 4, had treatment, recurrence 3 1/2 years ag...

CookieCake

•13 days ago

3 Replies

CA125 on the up

Hi, diagnosed 6 years ago with stage 4, had treatment, recurrence 3 1/2 years ago, on olaparib since end of that round of treatment. Bloods every 2 months and...

Hi, diagnosed 6 years ago with stage 4, had treatment, recurrence 3 1/2 years ag...

CookieCake

•13 days ago

6 Replies

Stage 1 possible

Hello. I’ve recently been provisionally diagnosed with stage 1 ovarian cancer (low grade). It looks to be contained within the ovary. I’ve been told they...

Hello. I’ve recently been provisionally diagnosed with stage 1 ovarian cancer (l...

Worrywart2000

•13 days ago

3 Replies

Write a post or ask a question

Posts - My Ovacome | HealthUnlocked

My Ovacome

Bevacizumab v Niraparib

peewee

New vlog/Dr Dr site - important statistic but not to do with OC survival

Covid-19 spring vaccination

Liverpool Health and Wellbeing Day 27th April - a few spaces left

What's on at Ovacome next week? (week commencing Monday 22 April 2024)

Recurrence of borderline?

Update to a previous post I had about ultrasound and CT not being able to detect if it's a fibroid or a mass.

Ovarian cancer vlog: Back to the Future, Part 1

Milestones

What happens when CT scan and ultrasound can't verify if it's an ovarian mass or not?

Recurrence :(

Ascites

Still doing well.

NGS panel

surgery before chemo

Anyone have side effects from omenectomy?

Bacteria in portcatheter

Ascites coming back,primary peritoneal

When should chemo restart post interval debulking surgery?

conflict of opinion

gemiciabine and hair loss

peewee

Mums recurrence

Hi can you take Avistan longer than the 22 cycles if it's working?

tired

Finishing Olaparib PARP after 2 years

CA125 on the up

CA125 on the up

Stage 1 possible

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