Encouraging news from Cambridge: I still read... - My Ovacome

My Ovacome

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Encouraging news from Cambridge

barleykeeper profile image
20 Replies

I still read this blog three years now since Carol died and follow the stories of so many of you treading this unwanted pathway. But things change, and new treatments and options come around all the time. I received this from my old university today and I thought you might find it interesting and uplifting.

cam.ac.uk/stories/ovarian-c...

I hope you can access it.

With all good wishes,

Nick

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barleykeeper profile image
barleykeeper
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20 Replies
Lyndy profile image
Lyndy

Thanks for sharing Nick!

Caleda4 profile image
Caleda4

Thank you so much for sharing this,it is very interesting.

rosebine profile image
rosebine in reply to Caleda4

Interesting that only 1 in 50 will be diagnosed. Ive never been "special" in any way in anything, would rather still not be special.

Mommoo65 profile image
Mommoo65

Interesting to read each lady has received a parp inhibitor as part of their treament. I was diagnosed 3C in 2015, debulking, 6 rounds of chemo, plus a recurrence in an inguinal node in 2020 treated with radiation and was never offered a parp. I am BRCA negative but parps are available for those BRCA negative. I wonder if it's a US vs UK treatment policy difference.? I live in the US.

delia2 profile image
delia2 in reply to Mommoo65

I’m in the US as well at Dana Farber. PARPs weren’t approved when you first got sick but they were available when you had the lymph node. I wonder if they thought it was such a minor recurrence that it wouldn’t be worth taking a PARP and they’ll give it to you if you recur again. They’re no picnic to be on day in and day out though they have been a game changer. Ask your onc!

Mommoo65 profile image
Mommoo65 in reply to delia2

I will. Thank you! The tumor in the inguinal node was a very isolated recurrence. A CT scan showed no tumors elsewhere and he was very aggressive with surgery and 25 rounds of radiation.

SUE7777 profile image
SUE7777 in reply to Mommoo65

I spoke to my oncologist in the UK and she said a parp wouldn't be suitable for me as I am platinum resistant and there is a platinum aspect to parps. Hope this helps, you could ask your team why they haven't offered you a parp. Sue xx

organicinna profile image
organicinna in reply to Mommoo65

Yes am braca negative but they offered me parp. my consultant said even before the op that after chemo you be going on Niraparib. Been diagnosed 12 month ago 4C )) XX

Joanie12 profile image
Joanie12

Thank you nic for this interesting information, very kind of you to share

Lochawe profile image
Lochawe

kind of you to share Nick, thank you

delia2 profile image
delia2

Thank you. I really enjoyed the article! It’s amazing to see ovarian cancer getting such attention!

Lilygums profile image
Lilygums

Thank you for sharing Nick. I am under the care of Professor James Brenton at Cambridge and he is a lovely, caring oncologist. He is a big advocate in trials and is very keen to get me on board with the trials team. Their work sounds very encouraging and I’d be delighted to be a part of it, not just for myself but for the future to help anyone else that has the misfortune to have to join our group. All you ladies out there - always ask if there are any trials available to you as well as regular treatment. Enjoy your (blustery) day and stay safe x

Doglover1410 profile image
Doglover1410 in reply to Lilygums

James Brenton is also my oncologist. A lovely man with and real honest attitude. The conversations we’ve had over the past 4 years!

Lilygums profile image
Lilygums in reply to Doglover1410

James Brenton certainly keeps it honest! Always explains well and keeps you informed. I can well imagine the conversations you’ve had. Hope he’s keeping you well. Best wishes Sue

Doglover1410 profile image
Doglover1410 in reply to Lilygums

He is so far 🤞🏻

meaty profile image
meaty in reply to Doglover1410

Addenbrooks is one of our speciality hospitals .I am in Norfolk. but I was referred to Norfolk and Norwich hospital. that is where I will be having my surgery. Mr Brenton sounds brilliant. hope my consultant is as good . xxx

Katmal-UK profile image
Katmal-UK in reply to Lilygums

Totally agree with asking about trials, I have been on three now and now in my 15th year from diagnosis. Currently 8.5 years NED and on a part inhibitor x

SUE7777 profile image
SUE7777

Thank you for sharing Nick, I am going to sign up. Sue

mrstadpole profile image
mrstadpole

Thank you for this link.Very interesting to read.

TMiPP profile image
TMiPP

Thanks for the update. Stay safe x

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