In my lungs now!: When I last wrote, I said that... - My Ovacome

My Ovacome

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In my lungs now!

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When I last wrote, I said that Rubraca was no longer working for me. Well today I heard from the oncologist's registrar, and she wanted to talk to me about my scan prior to the face to face on 2/12.

She said that I now have cancer in my lungs, and a lymph gland. Has anyone else had lung involvement and been offered further treatment? I am so worried that this could be the end of the road. My mood is not helped by the fact that I am suffering from concussion after cutting my head through to the bone, and breaking my wrist! My sister is with me for a few days, but everything has become so miserable and hopeless.

Jenny

18 Replies

Oh, Jenny. I’m so sorry to hear that you are having such a rough time right now. Head injury and a broken wrist on top of OC. You have to wonder how this is even possible. I wanted to let you know that my oncologist suspected that I had lung mets some months ago, but I declined a needle biopsy. I just had first chemo for my first recurrence. Recent CT scan shows multiple mets to liver and that a suspicious module in my lung has grown larger. Radiologist believes it is lung met. Still, I plod along. Early on, my oncologist told me that the chemo I am given for OC should impact the lung module if it is also OC. Please don’t lose hope. A different chemo regimen could be the ticket for you. Best wishes from Louisiana,

Sashay

Keep fighting and think positive. There will be options for you. 🤞💪🤗

I’m so sorry you’re dealing with multiple problems at once. It sounds like you had a bad accident. You need rest for the concussion but that and the wrist will heal given time. As Sashay said chemo should treat the lung Mets. Try to take one day at a time. It’s not necessarily the end of the road. Xx

Hi Jenny My recurrence was in my lungs and it was successfully treated. Unfortunately one of OCs superpowers is coming back in place s you didn’t know it could! I am sure your team will talk you through the options or you can get a second opinion. Don’t delay though because I ended up with double pleural effusion…not nice! x

I'm so sorry you're having such a shitty time , I don't think for a minute you're at the end of the road ,there will be other options for you . Rubraca didn't work for me either ,I'm now on four weekly Carboplatin and caeleyx , I've had what the oncologist called a nodule on my lung since I was diagnosed ,it hasn't changed in neary three years . I can imagine how hopeless and despondent you must feel , us chemo queens can take it , keep buggering in .Sending love and strength .Cheryl xx

Ask for KEYTRUDA!!! (look it up).....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 11/24/2021 12:18 AM EST

Tesla_7US profile image
Tesla_7US in reply to j-o-h-n

this group is for ovarian cancer

SUE7777 profile image
SUE7777 in reply to Tesla_7US

Keytruda is being trialled for OC currently and has had some good results in the States!

j-o-h-n profile image
j-o-h-n in reply to Tesla_7US

Thank you..... I knew that.... but quote "oncologist suspected that I had lung mets" I just happened to see her comment and since Keytruda is working on my lung melanoma and is known for treating lung cancer I thought I would inform the young lady of this med.

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 11/24/2021 4:02 PM EST

Tesla_7US profile image
Tesla_7US in reply to j-o-h-n

got it!

So sorry to hear this, mine is now terminal but my oncologist is still allowing me more treatment. I am on Cisplatin. Don't give up, keep fighting I am x

Don't give in fight all the way, your journey has been full of them trying to defeat this disease, look around and gain strength from all those times you dug down deep and fought. Wishing you well.

Nothing to add to previous replies just wanted to send you a gentle virtual hug. Xxx

Hi Jenny, I am new to forum and not yet posted anything about myself, just checking others posts and navigating myself around the system, but I wanted to say that I have found out a few weeks ago I have a recurrence in my lymph and lung also. I start chemo treatment tomorrow so its definitely not the end of the road! I do understand the rollercoaster thing of tears and hopelessness and then a more fighting and positive spirt emerges again, as others have said all the feelings are just part of the whole thing, good and bad, we wouldnt be human otherwise.. but I wanted just to say its definitely not the end of the road! Good luck to youx

We are here thinking and praying for you. Stay strong. Things are constantly changing in this battle and they can turn for the better. ❤️

I don’t have a reply, but just echoing the other ladies. Just sending a hug and and hoping your wounds will heal. So sorry about your accidents. Donna U.S. xx

I have lymph node involvement on clavicle and possible lung nodules ( I’ve covid lung damage and sometimes they think it’s cancer sometimes that ) and I’ve been offered radiotherapy and chemo - currently on carbo taxol again - mine is slow growing non serous subtype but everyone I know with recurrence has been offered more treatments even though it is deemed palliative rather than curative - I know recurrence feels harder than the original diagnosis at times but don’t lose hope - we might not be curable but can still have many more years even if that means regular chemotherapy x

Gosh Jenny what a horrible situation to be in my love, no wonder you are down, but as they say this too will pass, as you heal. I Have no magic button but you will heal & your team will be fighting to keep you going. Try to think just a day at a time please if possible. Sending loads of positive thoughts & strength your way, Iside x

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