HIPEC in the UK?: A while ago somebody mentioned... - My Ovacome

My Ovacome

15,082 members17,659 posts

HIPEC in the UK?

Jacky5 profile image

A while ago somebody mentioned that they had been given HIPEC (hyperthermic intraperitoneal chemotherapy) in the UK.

I'm interested in HIPEC and although it isn't used routinely here (doesn't seem to be recommended by NICE) I understand it is used quite regularly in the States. I wondered if it is available on the NHS at all and if so which hospital/area offers that type of treatment?

I'm also interested to hear if anybody has experience, successful or otherwise? Was it given as first line treatment ? Is it used after surgery for recurrence?

I'd be grateful for any information.

Thanks very much

Liz xxx

14 Replies

Hi Jacky, I haven’t had it or know anyone who has but I do believe this is done at The Christie. Their website may give you some guidance whether this is considered suitable for your cancer and whether they do this for NHS patients. Good luck x

Jacky5 profile image
Jacky5 in reply to Yorkiepudd

Thanks very much for the information . I'll take a look at the Christie website.L x

It is done at The Christie hospital in Manchester,for certain types of ovarian cancer , my friends daughter had it done there.Good luck x

Thanks very much for your reply.L x

Hi LizI went to see the Consultant at the Christie after my initial treatment to discuss HIPEC but in the end it wasnt needed (they thought i had residual disease but turns out it wasn’t). At that time a friend of mine had had it for a rare type of bowel cancer and she did quite well for a few years. I believe there was a study done around that time (8yrs ago) and some of the ladies on here certainly at that time had undergone this treatment. I believe it was deemed not to be any more effective than front line chemo in most cases. However this was 8 years ago and as we know things change xx

Good luck

Diane

Jacky5 profile image
Jacky5 in reply to Bettyxxx

Hi Diane Thanks very much for the information.

I'm coming to the end of 2 years of maintenance and feel very lucky to be doing well so far.

I'm only too aware though that things could change at any time and I want to be prepared with as much information as I can about what options are available.

I'm really glad you found you didn't need HIPEC and hope you're still doing really well.

Good luck to you too.

L x

Bettyxxx profile image
Bettyxxx in reply to Jacky5

Hi LizYes i am still well, 1 hiccup and operation 4 yrs ago but otherwise well, i do think its a lottery as to how we respond as i dont do anything extraordinary, i drink alcohol and eat sweets, i have just been lucky. I only took Niraparib for a year as the side effects were too bad for me but i think that year may have helped too

Good luck, message me if you want to know name of guy i saw

Regards

Diane

Jacky5 profile image
Jacky5 in reply to Bettyxxx

Thanks DianeI think you're right.

I started off trying so hard, went veggie, cut out dairy stopped alcohol and started long daily walks and drinking green tea.

I still walk but have reverted back to my old habits except for milk which I just don't seem to enjoy in tea anymore.

I just try to eat and drink sensibly.

Really glad to hear you're doing well and long may it continue.

Thanks again.

L x

Hi and yes I had HIPEC at Christies about 5 years ago part of cytoreductive surgery for bowel cancer. I was referred and it was a life saver as It was discovered I had ovarian cancer so this operation was the best one possible for that cancer. How lucky for me. It was done on NHS.

Jacky5 profile image
Jacky5 in reply to Heatherslade

Thank you for replying.That was lucky indeed. Do you think you'd have been offered the Hipec if you had presented with just the ovarian cancer or is it given more routinely when the bowels are involved?

How have you been since the treatment?

Heatherslade profile image
Heatherslade in reply to Jacky5

Not certain but don't think I would have been offered it just for ovarian cancer. Because my cancer count kept rising even after removal of part of the bowel and chemo and PET, CT and MRI scans seemed ok my then oncologist thought cancer could have spread to peritaneum. Probably just given a debulking op and the chemo if I presented just with ovarian cancer. It is an expensive operation and will only be done I think if the patient is fit and no obvious tumour spread. My surgeon at Christies said that I couldnt have had a better op for ovarian cancer as it happened and so then got referred back to my local hospital for further chemo for ovarian cancer. Struggled more with that regime than with bowel cancer chemo. Since then I have been very well, back to full fitness and my CEA and CA levels so far have been normal. My next check up is in a couple of weeks so hope my good luck continues and like so many others who post on this forum try to remain positive. As I said before I was very lucky and my treatment was second to none.

I'm really pleased you've been doing so well and long may it continue.It does seem you've been really well looked after and I think it makes all the difference to know you've got a great team fighting your corner.

Every positive story gives me a boost so thanks very much for that.

Hope all goes well at your check up .

Liz x

Hi Jacky5, I enquired about this with my wife’s surgeon (at a major London teaching hospital and cancer centre) last week, as I’ve been interested in finding that info out too, and I was told it is not currently offered on the NHS - and there is a bit of a race between a number of hospitals to make that happen.

So I assume that the hospitals that currently offer it in the UK do it on a Private basis. Let us know if you find out otherwise!

All the best!

C

Jacky5 profile image
Jacky5 in reply to CFVD

That's intersting. So your wife's surgeon implied Hipec may become more readily available?I've read conflicting reports about the effectiveness of Hipec but feel that when/if my cancer returns I want to be prepared, informed and ready to be as aggressive as possible.

Of course my Oncologist will probably have other ideas!

What I find confusing is that the Dr's are I believe supposed to be bound by Nice clinical guidlines but certain Drs/hospitals seem to have more of a free hand.

Anyway, wishing you both all the very best and hope your wifes treatment goes very smoothly.

Liz

You may also like...