My name is Roman and I'm from Melbourne Australia.
I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high grade serious ovarian cancer in 2017. I think I've read every post since joining and feel as though I know many of the ladies on here. I can't tell you enough how brave you all are and what an impact you've had on my life.
In 4.5 years my mum had 4 lines of chemo, 4 surgeries, olaparib, niraparib, avastin, letrozole and cyclophosphomide. Ive never seen anyone battle as hard as she did. I would have given up anything to take some of her pain.
Unfortunately today on the 17th of August my mum lost her battle. The past three months have been the most difficult with constant pain, bowel obstructions and fatigue. We took her home three weeks ago and she celebrated her 63rd birthday whilst in palliative care. There was absolutely no way we were going to let her go in a hospital or a hospice. We provided her with round the clock care whilst she was at home and she had someone with her every second of every day. I couldn't stand the thought of my mum being alone for a single second.
I can't believe how lucky I was to have a mother like her. She will always be a part of me and I'll always live life as though she's watching everything I do.
Not exactly sure why I'm making this post but felt as though I needed to say something after being on here for so long.
Throughout this journey ive spent countless hours researching and i wanted to let everyone know that there is a massive pipeline of new drugs entering early phase trials or close to receiving various regulatory approvals. The pipeline for cancer drugs is huge and I have no doubt this will translate to better results for women with OC. In the past five years, there has been a tremendous amount of progress. From the approval or olaparib, niraparib, rucaparib and avastin. There are many early phase trials looking at new treatments such as Wee1 inhibitors, CTLA4 inhibitors, personalised vaccines, targeted drugs such as mirvatuximab and VBL 111. My guess is that there should be at least two new drugs available within the next 12 - 24 months (mirv and vbl 111 which are both in third phase trials and have had encouraging preliminary results).
The next challenge for our family is to farewell my mother. We had 10 new covid cases yesterday means Victoria is in a complete lock down with a curfew. There are only 10 people allowed at the funeral.
Thank you for taking the time to read my post.
Feel free to message me if you have questions about my mum's treatment or what I would do differently if we had to do it all over again.
All the best and take care.