Taxol

Hi Ladies

Just a quick catch-up.

Unfortunately Caelyx did not work for me. Ended up in hospital with high temps after two out of three infusions. Scan showed slight advance of cancer so it was decided to put me on Taxol. Three weeks on and a week off. Should have started last Monday but sickness crept in and ended up in hospital again.

Going for bloods today and should start chemo next Monday.

Been dry retching again this morning so hope will make it.

Hope everyone keeping as well as possible, anyone heard from Laura lately?

Love and Best Wishes to all

Janet

[Hidden]

Hello Janet - I know how devastating this type of news can be, but keep on fighting. I am on 4th recurrence, but I do believe there is a treatment that will work for me, we just haven't found it yet, don't give up!

Good luck for Monday xx

[Hidden in reply to Hidden]

Thanks Lyn.

5th line of treatment. Tired and sickly before it starts.

Best of luck to you and hopefully they will find a cure soon for everyone.

Janet

X

[Birdsong222]

Hi Janet

Like you caelyx didn't work for me and the disease progressed. So 4th line is single Taxol, which l started 5 weeks ago. So far all good with a reduction in ca125 (feel like this should be whispered). As l had become so ill my consultant deemed it was time for aggressive action. Will be weekly until ct scan confirms shrinkage in tumours. Then 3 weeks on one week off, if my body can tolerate for a full 18 infusions.

So far l have found it OK. Only at hospital for 2-2.5 hours. They give steroids and piriton before hand. Haven't needed any take home meds and just use omeprazole for 1/2 days for indigestion.

Do you think your sickness is disease related? If so chemo may help.

By the way, l even kept my hair for the first 3 infusions but then after 4th one l had rapid shedding. So back to my scarves and wigs. No need for winter hats!

Sending you best wishes for the treatment ahead.

Sylvia x

[Hidden in reply to Birdsong222]

Hi Sylvia

Thank you so much for your reply.

Yes I think sickness is disease related. Due for 3weeks on 1week off from Monday.

Going for bloods later today.

You have really lifted my spirits, feeling very sick and down today.

Hope the rest if your treatment goes well and we do beat this!

Take care, love

Janet x

[delia2]

Hi Janet. Sorry to hear you’re feeling so nauseous and that Caelyx didn’t work for you. Hopefully the taxol will do the trick and quickly. I’ve been wondering about Laura as well. Xx

[Hidden in reply to delia2]

Hi delia2

Thanks for reply. Fingers crossed again!

Best wishes

Janet

[Lind58]

Wishing you the best of luck! I’ll be praying for you

[Hidden in reply to Lind58]

Thank you.

[Lizzieanne]

Hope you have a good result with Taxol and that you feel a bit better soon x

[Hidden in reply to Lizzieanne]

Thank you.

[Gemimablackvelvet]

Good Morning Janet,

hope the blood results are good and you can carry on with your treatment on Monday. ‘Things can only get better‘ as the song goes.

Hope you have a nausea free weekend. The weather looks promising at least.

I’ve been wondering and worrying about Laura too. I’m sure she’ll get back to us eventually.

Lots of love to you

Angela xx

[Hidden in reply to Gemimablackvelvet]

Hi Angela

Thanks for reply.

Janet

[Vicel]

Hi Janet

Sorry to hear about your rough patch and hope that you feel better soon. They just need to find the one that works for you.

Carbo/plax and Zejula didn't work for me so I've just started caelyx which is making me very sick and I now have head spins which make me fall over or throw up!! Great but perhaps this one will work for me, who knows? We must just keep going, chipping away at it. Good luck.

Kind regards

Vicki

[Hidden in reply to Vicel]

Hi Vicki

Thanks for reply, really hope Caelyx works for you and the side effects stop.

Best of luck with your treatment.

Janet

[ellseybellsey]

Janet sorry to hear Caelyx didn’t work for you I am starting Cisplatin / Caelyx, onc said he’s hoping we get a response from this combo.

He did mention weekly taxol if it doesn’t respond. I hope you manage to start your new regime.

Hugs Ellsey xx

[Hidden in reply to ellseybellsey]

Hi Ellsey

Thanks for reply. Hope you get a good response from the new combo.

Good luck with everything

Janet

[Hidden]

Tough times, Janet. Hopefully the Taxol will work well. It’s horrible to be feeling so unwell. Maybe something could be prescribed for that.

I have been thinking about Laura too.

I hope you’re a bit better today and that you’ll be well enough for treatment on Monday.

Anne 🤗🤗🤗🤗🤗

[Hidden in reply to Hidden]

HiAnne

Thanks for reply. Dreading Monday at the same time wishing it was here.

Take care

Janet

[Ruebacelle]

Good luck. I am finishing 3 months on taxol which eliminated the new cancers and redhced luver tymor from 32mm to 21mm tbi the clouds kn lungs are still there they are stable. Found it very easy. I do a light fast 24hrs before and after so no side effects except toenails brittle. The uce helmet works. Make sure they change ut halfway through. Stay strong. Big hugs from france