Results

[Maltida61]

Got appointment to see oncologist tomorrow for my regular checkup. My ca125 has increased from 1435 to 1668 over the course of 21 days. I have been on epitoside ? since feb . Was put on that as level had increased from 700 in nov to 1600 in feb. Level 1st dropped to 1200 at 1st dose & simce then flutuated around the 1400 mark. Unsure whats going to happen now with treatment. Ct scan 6 weeks ago shows shrinkage in liver tumour but slight increase in armpit node. I feel no different that what i did lastyear.

[Hidden]

Sorry to hear your CA125 is on the rise, I am in a very similar position at the moment in that I finished chemo and am awaiting CT scan, I have a raised CA125, playing the waiting game really messes with your head, I have imagined all sorts of scenario's, from "were sorry there is nothing more we can do" to " your cancer has all gone"!!

What I do know for sure is that my team have my best interests at heart and will forge ahead with a new plan for me. Your team will do the same, we just have to trust them.

Try to stay busy and positive until your meeting tomorrow. Good Luck x

[Maltida61 in reply to Hidden]

This is my last avaliable treatment. I started with carbo/ paxi in sep2018 followed by debulking surgery nov 2018 then another 3 of just carbo. In july 2019 i did gem ? with that finishing in nov 2019. Then current oral treatment. I have so far had 8 rounds of 14 day treatment with 7 days off between each.. Its the never knowing whats around the corner that does my head in. People look & say you look well. Treatments obviously working for you. If only they could see my thoughts. All they would see is a jumbled mess.

[Hidden in reply to Maltida61]

I started treatment in July 2018, I have not been told that I have reached my last available treatment? When you see your team tomorrow, explore every avenue, including clinical trials which are slowly opening up again.

[Maltida61 in reply to Hidden]

I am in NZ. Did look at private options but as explaned to us was what i would pay $ 6000 per round for is no better that what i currently get in the health system. This sort of leaves me thinking what are my options now. They said i will never beat it but cant say how fast it could progress without treatment.

[delia2 in reply to Maltida61]

Hi. I don’t think you’ve had caelyx nor weekly taxol with Avastin? It seems like those are given regularly. Plus there are trials. I hope you find an option.

[Katmal-UK]

Everything crossed for your meeting tomorrow xx Kathy xx

[Maltida61 in reply to Katmal-UK]

Thankyou. He said its only a number and everything else as far as my bloods go looks fine. No reason to stop treatment. Ct scan in 4 weeks possibly.

[Kempyhillbilly]

Really hoping it’s good news for you, I know exactly how you must be feeling. Big hugs xxx

[Maltida61 in reply to Kempyhillbilly]

Thankyou. It sure is a nerve racking feeling..

[Di16]

I was told in January 2017 that I was running out of treatments, but I've just started my 3rd type of tablets since then, one of them a repeat of a previous, & one of them a commonly prescribed hormone blocker that they'd overlooked the fact that I hadn't had it. I know hormone blockers are not suitable for everyone, but I hope there is something out there for you. Di

[Maltida61 in reply to Di16]

What do the hormone blockers do.

[Di16 in reply to Maltida61]

If your cancer is hormone receptive, they hold back the production of those hormones (I think) & may hold back the progress of the cancer for a while. The one I've just stopped taking, Letrozole, held back growth of mine for 2 years. Di

[Maltida61 in reply to Di16]

I dont know if mine is hormone receptive. All i know is it was in my left ovary & since my debulking surgery it has shown up in my liver.