How I wish some were still here....

[CallmeMum]

Hi lovelies,

I hope you're all as well as can be?

My special person is back in hospital she very likely has a bowel blockage as she can't wee or poo so will probably be back on chemo soon...

It's times like this that I wish certain ladies were still here with us to guide us through what to do next I have had the pleasure of virtually knowing some people that I could not have gotten through some of this stuff without their wisdom and support.

The biggest thing I fear is my special person will be told "sorry there's nothing else that we can do" sooner rather than later she's been on this journey for 4 years with several reoccurrences and 8 lines of treatment, who knows though...

Xxx

[delia2]

I hope things go better than you fear and that they get the blockage resolved.💐🌺🌸

[CallmeMum in reply to delia2]

Thank you. I hope so too, I think that it's facing the reality more than anything else which is a scary thought, don't get me wrong we've been realistic the whole time but it's always been down the line xxx

[BeeWild]

Sending big virtual hugs and hope things can be resolved for your special person xx

This disease really is a b@@@h!!

Much love

Bev xx

[CallmeMum in reply to BeeWild]

Thank you, its definitely a b@@@h I wish there was a cure for it too many good people are taken by it! Xxx

[Caroles1]

Hi Hun,

There is always hope, never give in, 5 years ago I was told I only had 2 weeks to live and I was only 1c.I am still here treatment free.

I feel guilty since so many are suffering, but so many have been told there is no hope and they are still here.

Where there is life, there is hope, life is precious and needs to be fought for.

If you are at all bothered, speak to Anna on here for advice, or seek a second opinion, sometimes a fresh eye can get results your team hadn’t thought of,

I wish you all the best,

Carole xx

[CallmeMum in reply to Caroles1]

'll suggest another opinion for her and see what she thinks. She was graded at 3c and told 6 months at the most with chemo so has done really well but Im confident her team are running out of options xxx

[Maus123]

No experience with bowel blockage (yet), but hope she will recover from it. Remember Game of Thrones... 'What do we say when death comes knocking?' - 'Not today.' Hugs, Maus

[CallmeMum in reply to Maus123]

Definitely! With some luck it won't be for a long time to come but in the pit of my gut something is saying sooner rather than later xxx

[Mrsmerlot]

Nothing is impossible! Lots of good wishes to you both. Xx

[CallmeMum in reply to Mrsmerlot]

That is very true, well just have to wait and see xxx

[Hidden]

I know what you mean about missing many women on here.

Your special person is obviously strong and determined. That will help her.

Wishing both of you some better news and a solution to those blockages. 🤗🤗

[CallmeMum in reply to Hidden]

Thank you! It's just I really wish something would work for a nice long period of time rather than the short bursts to give her a better chance of living a bit longer xxx

[Petrolhead]

This disease is so hard. Sometimes I wonder if it is harder for those that care for us. It helps so much when we have support and love from others. Really hope that your special one has more comfortable longer period. Best wishes

Fay

[CallmeMum in reply to Petrolhead]

I think its hard for everyone no matter whether they are going through it or caring, it affects people in different ways. I hope she has a comfortable long period too xxx

[Katmal-UK]

Having hung around on this forum for so long, doing well so far, I didnt know how to reply to your post really, not just part of me but probably all of me feels guilty when I see so many wonderful ladies come and go and yet I go on. I shed a tear for them all, for all the ladies everywhere fighting this damn awful disease. My son ran the muddy race for life Sunday and on his shirt he wrote he was running for 'Mum, Grandad, Nana, Nan, Grandad, Everyone ' and that made me cry, for the loss not only that our family has gone through ( and that includes several cousins) but the loss that everyone endures, the misery this disease causes. Sorry, Ive turned this into a bit of a rant. I do hope your loved one is comfortable and can get through this difficult time . Sending a gentle hug to you both xx Kathy xx

[CallmeMum in reply to Katmal-UK]

It's people like you that keep her going with your positivity towards everything that's thrown at you it gives a glimmer of hope that there may be something that will work xxx

[SuziTench1]

Big hugs to you both , I think that this journey is also hard for the loved ones , as we become so consumed by this Pig of a disease that we forget . Im sure your special lady will do her best and a new treatment hopefully will help .. Sending big hugs to you both xxxx

[CallmeMum in reply to SuziTench1]

Thank you. This disease is just constant as soon as someone gets it it takes over everyone's life and you forget what it's like to have a month without a hospital appointment, unless you go into remission, its been my life for the past 4 and a half years, my youngest was 4 months old when she was diagnosed and he's not known any different xxx

[ShropshireJo]

Hi. Your comments struck a deep chord with me. All we can do is hope that we can pass on to others what we’ve learned from wise ladies here over the years. I do hope your loved one’s current situation is not so bad as it seems at the moment. OC is like being on a roller coaster and I think it is harder for our loved ones than it is for us so please take time to be kind to yourself so that you can make the most of time with your special one. Sending love and hugs Jo 🌻🌼🌸🌻🌹🌺🌼🌸🌻🌹

[CallmeMum in reply to ShropshireJo]

A roller-coaster is definitely what it is! The problem I tend to have with cancer in general is it doesn't care who it takes it seems to take the loveliest people rather than people who deserve it! Xxx

[ShropshireJo in reply to CallmeMum]

I know what you mean but I wouldn’t wish it on my worst enemy. xx

[ShropshireJo in reply to ShropshireJo]

I do hope my last reply didn’t upset you. I was going on to say my worst enemy, a man at work who made life miserable for quite a few of us, succumbed to cancer about six months after I retired.🙁 Am all a bit of a quiver as am being assessed in hospital to see if huge tummy is ascites or partial bowel blockage. Hope I don’t have to stay. xx

[CallmeMum in reply to ShropshireJo]

Not at all I know what you mean though, I know 1 person who has died of cancer that I can say deserved it, even my special person has said she wouldn't wish it on her worst enemy xxx

[Maxjor]

So sorry what your loved one is going through and lets not forget, you too. It's hard to be in this--as the person with the disease or those supporting them and you have been by her side throughout. I hope its not the last option and I hope she gets some relief soon. oxoxxo Judy

[CallmeMum in reply to Maxjor]

I hope so too but it just depends on what her team say if her team say there's other options that's fantastic but she's had 7 lines of treatment and maintenance drugs in 4 years and when I look at how Lorraine went a few months ago it saddens me as they had a very similar journey xxx

[Shellygirl]

I’m so sorry to read about your special person. I hope they can sort out the symptoms and get her back on her feet again 🤗🤗

I so echo your sentiments people on here I consider my friends I’ve never met them in person but the hours their support got me through are unmeasurable. I’ve laughed and cried a little but it was always ok here. I miss them terribly, my family don’t understand the comfort this forum offers.

Sending hugs and best wishes

Shelly xxx

[CallmeMum in reply to Shellygirl]

I completely echo what you say! I find so much comfort here especially at times like this I can always post and someone will reply with something positive just to get me through the little bit I need to get through xxx

[ellseybellsey]

Please pass on my love to your special person, I hope they manage to get the bowel obstruction sorted. I understand what you mean wishing all our teal sisters were still here to inspire us all.

Hugs Ellsey xx

[CallmeMum in reply to ellseybellsey]

I'll pass it on and I hope they can get the obstruction sorted out too its mainly waiting to see what they can offer! Xxx