Obstruction / blocked bowel - no surgery. Any a... - My Ovacome

My Ovacome

17,618 members19,895 posts

Obstruction / blocked bowel - no surgery. Any advice - PLEASE

eh11g11 profile image
15 Replies

Hello - please does anyone have any advice at all. My mum had surgery yesterday for an obstruction but they couldn’t operate and said the cancer had spread too far. And was all across the bowel, my mums CA125 has been going up and we have been back to a&e numerous times. The surgeon is now saying they are going to refer us to palliative care because they don’t think that oncology would do more chemo. We are still waiting for oncology to come back with anything - as always chasing, chasing. She finished chemo in September and has been on avastin since then. Please does anyone have any advice at all?? Surely there’s more chemo or drugs. We have been asking since Feb for another scan but but they said they weren’t concerned and now it seems the disease has spread very quickly. She hasn’t had Niraparib or anything

Written by
eh11g11 profile image
eh11g11
To view profiles and participate in discussions please or .
Read more about...
15 Replies
TinaB1 profile image
TinaB1

Hi there.. there is a nurse led helpline at Ovacome. I think you might also get some experienced advice from the lovely people there. Xx

Lindaura profile image
Lindaura

I am so sorry you are faced with this situation.

If your mom is in the hospital or bedridden, it will be hard to ask for a second opinion, but that is what you need.

Do call the Ovacome support line and see if they can advise you.

What a shame this all is!

Hugs,

Laura

eh11g11 profile image
eh11g11 in reply to Lindaura

Thank you for your reply Laura. I don’t even know where to start with a 2nd opinion do you have anyone you would recommend? Would it be the secretary as the first point of call?

Lindaura profile image
Lindaura in reply to eh11g11

I am not certain about doctors in the north, but someone here may have a suggestion. I know ladies respect The Christie in Manchester.

Meanwhile, Ovacome's Support Manager, Anna, may be able to guide you - freephone helpline 0800 008 7054.

Hugs,

Laura

Lindaura profile image
Lindaura in reply to Lindaura

The Christie is in Manchester and this might help:

Prof G J from The Christie is one of the medical advisers (So is Prof C F, whom many have seen for second opinion on possible radical surgery for recurrence)

eh11g11 profile image
eh11g11 in reply to Lindaura

Thank you xx

Yoshbosh profile image
Yoshbosh

Hello,

I hope the oncology team is able to come and speak to your mum ASAP. Whether there are more chemo options are available may depend on how poorly she is. If she’s too weak, it may not be possible.

I do agree with Laura about a second opinion if that’s possible though.

I hope you can both get some answers very soon. Bowel obstructions are nasty - I’ve had two but have been lucky that they’ve cleared.

Vicki x

eh11g11 profile image
eh11g11 in reply to Yoshbosh

Thank you Vicki xx

eh11g11 profile image
eh11g11

Thank you - I don’t even know where to start for a 2nd opinion.. do you have anyone you would recommend for this at all? Thanks x

Neona profile image
Neona in reply to eh11g11

Where are you?

eh11g11 profile image
eh11g11 in reply to Neona

North west England - Wirral

Yoshbosh profile image
Yoshbosh in reply to eh11g11

If you are in the Wirral, I’d definitely recommend a second opinion at the Christie. Your mum’s GP can do a referral for her if her hospital team aren’t being very helpful. There’s a prof there (Prof J...you will find him on the Christie website) and people absolutely sing his praises. I haven’t been to The Christie so can’t speak from personal experience.

Good luck, Vicki x

eh11g11 profile image
eh11g11 in reply to Yoshbosh

Thanks so much, I have found him. I just hope the blocked bowel starts to clear itself :( :( I am waiting for the Christie to get back to me. I am just so worried about how fast my mum can become poorly again

Janini profile image
Janini

Hi, I’m on the Wirral too under the care of Clatterbridge, have you tried speaking to Danielle the CNS there? She’s excellent at chasing. DM me if you’d like her number. Jan

Colman profile image
Colman

Hi. Can't really give you any info on a second opinion as I'm not in that position as of yet but I've had a couple of blockages and I feel for your mum as it is extremely painful. I to have my treatment at clatterbridge and find if you get in touch with the CNS they will do there best to help you. Keep on at them your mum deserves as much help as possible.

Love Claire xx

You may also like...

Bowel Obstruction - drastic surgery

place!! You have all been so supportive before.. please if anyone has any advice for tomorrow...

Bowel Obstruction, Help please!!!!

now that the cancer has progressed to her bowel, she has been so brave but today she sounded really...

Bowel Obstruction Management

was looking for any advice about managing obstruction through diet. I have been admitted 3 times now

bowel obstruction help!!!!

bowel obstruction had to be taken off immunotherapy Im in hospice now until bowel obstruction...

10th Bowel Obstruction

surgeon at the Marsden who has said it is so risky due to several obstructions they may put a...