I hesitate always to write updates like these but we must share the good as well as the bad, it helps to balance the picture and to encourage newly diagnosed ladies that we really can get our lives back after the trauma of diagnosis and the assault of surgery and treatment. I think about those struggling a great deal and would never want to upset anyone.
I have passed another 3 month check, CA125 staying nicely at 10. This brings me to 2 years post front line surgery & chemo remission. This is a huge milestone for me, I lost my sister 4 years ago to this hideous disease and she was never as lucky, I fly the teal flag for her and everyone of those who we’ve lost. I’m extremely grateful and happy today, but in a strangely reflectful mood.
Huge love to all ❤️❤️
Marian xxxx
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Fingers crossed. Yes I’m 2 years post chemo and 1 year post Avastin. Have my oncology appt next Thursday where I’ll get my CA125 and scan results.
As you say, I’m feeling extremely grateful for every good day when we know so many who are suffering or have been taken before their time by this devastating disease.
It’s hard knowing how quickly things can change but then that’s life with or without cancer and we know firsthand how important it is to make the most of everyday. 💜
Beautiful friends staying with us this weekend at the coast so lots of laughter and dog walks on the beach even if it’s cold and windy !
Love your list of holidays in your profile hoping to book some trips for this year now my husbands off crutches following his knee replacement.
No Kim I had heard about Angela but not Lorraine..... this damn disease, such beautiful ladies being taken from their families and loved ones. We can never forget them. I still think so much about Sarah, Suzanne and Choski too 😢xx
Yes all women who I had a connection with and were such a support when I was going through treatment, although we never met, I too think about them often. Sarah and I have kids similar age and I hope and pray they’re doing ok. Can’t help feeling guilty sometimes that I’m still here but know they would want me to make the most of every day as I’m sure your sister would want for you. My fundraising and volunteering is for them too 💜
Beautiful sunny morning here so I’m off for a dog walk on the beach.
Thank you. Yes it’s been incredibly hard. I automatically thought I would follow her difficult journey and I got diagnosed only 11months after watching her succumb. Diagnosed 5 weeks after my mum died too ..... we find strength we never knew we had don’t we?
I think we do - I had lifetime of health anxiety and ea really struggling before diagnosis - I even refused to speak to my CNS and my husband had to tell her I felt suicidal yet I’ve coped since surgery and chemo and mostly feel ok with my fate x
On the theme of 3 monthly check ups, apart from CA125, what normally happens at your appointments? Hope you don’t mind me asking. (It seems to vary quite a lot across the country..)
Hi Linda, how are you doing? Are you still on Avastin?
Yes it’s CA125 and other bloods (fbc, u&e, lft, mag, calcium). Then a physical exam by Oncologist and a chat about any symptoms. My Onc doesn’t like scanning unless there is a good reason, mainly because of radiation and unnecessary anxiety . With me she thinks CA125 is important marker for me because it was 900 at diagnosis. Like you say though it does seem to vary across UK.
So happy to read this Marian. I love reading posts like yours and I understand being reflective but then include enjoying your life with a big smile--or a more normal life or whatever it is you do to celebrate such a milestone. Congratulations. oxoxox Judy
Oooh we do need the good news to counteract the bad and give us all hope so please keep posting. I am so pleased for you although it is understandable to think about your sister and find the day bitter sweet. Long my your remission continue. xxxx
This is wonderful news and I’m so happy to hear you’re doing so well and feeling good! You’re right that the positive stories give us hope and i’m a relative newbie approaching one year since diagnosis, I hope I can follow your pattern and continue beating the beast!
I hope your remission lasts forever and wish you happy times ahead, big hugs,
How wonderful news. It's so uplifting, it made me very happy that there's hope for most of us. Please continue to post as I'm following you Marian. I was diagnosed in September 2016 same as you. Although I recurred after 14 month post 1st line, I started having chemo again in May for only 3 cycles of carbo/taxol, because I responded very well, I had the options to start Niraparib. I'm now on it for 6 months now and my Ca 125 sits between 8-13 I'm praying this will last for a long time.
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