Caelyx for the first time this week

[PhillipandBettykid]

Or is it Lucozade? If I was in Scotland I would definitely say Irn-Bru.

[CallmeMum]

It’s Lucozade 🤣

[Lily-Anne]

They call it the Red Devil

I prefer Tizer lol

LA xx

[PhillipandBettykid in reply to Lily-Anne]

Ooh Tizer. I had forgotten about that 😋

[harpist_UK]

Unfortunately not quite the hue of a rose wine ...

[PhillipandBettykid in reply to harpist_UK]

True but I’d rather have that through the mouth

[harpist_UK in reply to PhillipandBettykid]

oh glug glug yes!

[ellseybellsey]

It looks like irn- Bru to me I don’t live in Scotland but daughter does.

Ellsey xx

[Doglover1410]

Hadn’t thought of that! Just to let you know they told me I may have pink/red wee and when I didn’t I freaked that it wasn’t working! I’ve had no 5 yesterday and still no pink wee....and apparently that is completely normal too!! And CA125 has over halved!

Keep moisturising!!

[PhillipandBettykid in reply to Doglover1410]

Thanks. They did warn me too and also about rash, etc. Glad it has worked - brilliant

[Doglover1410 in reply to PhillipandBettykid]

Yep I do have the rash, like a browning and then peels, seems to be in hot places, under bra, waistband, armpits etc but it’s just a bit uncomfortable and some lovely cold E45 eases it x

[Lindaura]

Dear Betty,

It is the weirdest stuff, but definitely did the job for me!

Hope it works for you.

Are you having it by itself or with Carboplatin?

I kept all my weird curly hair and killed the cancer, too!

Best of luck,

Laura

[PhillipandBettykid in reply to Lindaura]

Thanks for the encouragement. I am having it with carboplatin. Like you only just got my hair back from last year’s Carbo/pac regime so pleased to hear the funny curls will stay.

[Di16]

One chemo nurse suggested I was having rose, but I think most people think the colour isn't right. Di

[PhillipandBettykid in reply to Di16]

Definitely wrong colour and if it was I’d want it orally

[coksd]

I imagined it to look more blood-like colour it actually looks like lucozade.

[Loverosie]

Good luck with it, i start the same combination as you on Wednesday. I think we can manage with coloured pre if it's savage with the cancer! Xxx

[PhillipandBettykid in reply to Loverosie]

You are right good luck for Wednesday