I'm an OC patient 2 years along the road, after surgery, chemo, surgery 6month break and a second dose of chemo. It has works to a degree for me. So at the moment I'm "ok".....
My OC burden is like a shaddow to me, I may occasionally forget it's there - because it doesn't and hasn't caused me real physical distress - so far - just tiredness & bloating - but it's there, it came up on me like the sneak it is.
My hope is to find the positive in things and I find lots of these reading this blog, so big thanks to you all!
Anyway, I'd like to share this 3 minute talk with you - it will bring tears. It isn't about oc but brain cancer and I found it very moving.
To be honest, I wasn't too sure about the talk, as I am not in remission myself so I can't be so reflective and upbeat about it all as a gift - more of a time bomb for me I think LOL.
However, it is great to hear you are remission and that your physical symptoms are minimal.
I have not listened to the talk yet, need time to concentrate. They do not use the term remission with me, though I have a similar history to yours. I am experiencing some quite severe discomfort under my left ribs and I am, to be honest s**t scared. I have rung my nurse who is chasing my scan results with a view to gettinG my gynaecologist to look at them. I think I might be with Lizzie on this one though I shall listen when I take my rest later.
I too have been getting pain just below right and left rib cage. Sometimes one side sometomes both. Have had it since chemo. ? Chemo, ? spleen or liver Have bits on both, ? bowelly, muscular, adhesions who knows. I don't think it is worse since my ct scan so am keeping fingers crossed.
I am doing good like you Cara however, when I was having my chemotherapy I met a young women in her early 30`s who had a new born baby and a small 2yr old toddler. She had breast cancer, we sat together throughout our chemo every 3 weeks and then occassionally we bumped into one another in clinic. THEN I didn`t see her for a while.
At my last oncology check up in January I saw my friend in clinic again - she was not looking very well and using a zimmer frame to steady her walk, I knew she was not doing so good. Her cancer had come back, but this time she had 8 brain tumours - she was so brave in telling me she was going to die, she told me about her children and her fears leaving them behind. I sat and squeezed her hand with tears streaming down my face. I have never met anyone as brave as she was that day.
So darling sweet lady, I can`t listen to the talk, I know it will leave me in bits, I am never as brave for others as I have been for myself, strange that but a fact.
I can`t do tears right now, had enough of those on and off to last me a life time.
I try to do things that make me happy and laugh, laughter is what I need right now. My heart goes out to anyone and everyone who is involved with cancer.
Maybe one day I will be in a better frame of mind to listen to the talk.
I see your point Tina! I don't do tears either! My ma dealt with tears with "if you don't stop I'll give you something to cry for" as a result I find public tears hard to do! Sometimes at night though ................!
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Let's talk about wigs
my talk to belfast city council
Sad farewell to two inspiring Ovacare ladies
Update on Gill...Our very own inspirational woman
Talk to clinicians - your comments needed
