I’m still here. Been given some hope. - My Ovacome

My Ovacome

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I’m still here. Been given some hope.

Suzanne333 profile image
59 Replies

Hi lovely ladies (and gents)

How are you all? I’ve not been here a while but did read all your lovely messages from my last post. Thank you all so much.

I’m just back from Hammersmith hospital. Went Monday to see a consultant. On Tuesday I went back for a procedure to have a metal stent fitted which is draining a cyst in my stomach which is causing compression. I go back for a scan in two weeks and they’ll take it out or replace it with a permanent plastic one. I just need to be able to eat to build myself up as I’ve lost three stone. I’m relying on a wheelchair as I’ve no strength.

Also Hammersmith can get me rucaparib which I’ll be starting soon hopefully. Hoping this drug will keep me here longer.

Thank you all for being such a strength of love and support. You are amazing ladies.

Will kick this cancer gremlin. Will have a bloody good go anyway.

Sending you all so much love and huge hugs xxxx

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Suzanne333 profile image
Suzanne333
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59 Replies
Luchie profile image
Luchie

I'm so pleased your back, and something is being done to you. Continue to get your strength back. Hugs to you lovely lady. Xxxx

Manchesterlady profile image
Manchesterlady

Lovely to hear from you Suzanne , sending love and hugs right back at you. Hope you continue to do well and manage to eat something to build your strength up .

Love Sheila xxxx

Pishi123 profile image
Pishi123

So happy to hear from you. Have you ever tried those ensure milkshake drinks? I found they gave me energy and liked the taste. Are you ay Gary Weston hospital? It is near to East Acton tube. I hope you get a bit of strength from these drinks if you try them. X

Jackie0 profile image
Jackie0

Great to here!!! Am sure your positivity is helping!! Well done to you. Keep it up!! Know you must be suffering with great discomfort but sure the doctors will do all possible to keep you up and running!!

We have to keep fighting with all our strength against this bloody alien invader!!! Why is it we only loose weight fir the wrong reasons??

Lots of love Suzanne not long until Xmas something for us all to look forward to 🎅🏼🎅🏼🎅🏼🎅🏼🍷🍷🍷🍷☃️☃️☃️☃️☃️

Juleswhee profile image
Juleswhee

Oh Suzanne , great to hear from you and good news .Just praying for you to get strong xxJulia xx

Joanie12 profile image
Joanie12

Blessings Suzanne, keep the fight going, you can nail this!! Xx

Lyndy profile image
Lyndy

❤️❤️❤️❤️❤️

Hello Suzanne, lovely to hear from you! here's hoping the stent gets sorted quickly so you are able to eat and regain your strength. sending lots of virtual hugs and positive energy. Lyn xx

Emalou71 profile image
Emalou71

Hi Suzanne, so pleased to hear from you, hoping the stent is working for you & you can start eating. That's a lot of weight to lose, have the team offered any suggestion on build up drinks or are you just seeing what you can manage for calories?

Sending lots of love xxx

Katmal-UK profile image
Katmal-UK

Oh Suzanne I am so please to hear your update! We are all behind you! I think you have just made me smile for the first time today. Big Hug! Kathy xx

Hampton0000 profile image
Hampton0000

You are a very sweet young lady and I see how you fight and keep on fighting. Keep your amazing and bubbly spirit going long as you can. You are beautiful in and out.

Lindaura profile image
Lindaura

Oh Suzanne,

So glad you made it to Hammersmith and they are planning to sort you out and give you a chance to try a PARP inhibitor.

Fingers crossed it all goes well and you can begin to eat again.

It is so awful to get so thin and weak.

I am on Carbo/Caelyx for first recurrence. Turns out, so far, except for the first 7 days, it is a walk in the park.

And a major side effect is my appetite is huge! Everything tastes fine and I am hungry all the time.

Total change from first line.

I wish you could be on something like this, but your cancer was totally more invasive than mine. Touch wood.

I wish so much that yours will be destroyed and that you can just get back to the simple things in life, like eating and drinking.

All our best wishes are going out to you,

And many hugs,

💕❤️💕

Laura

January-2016-UK profile image
January-2016-UK

Great to hear from you and with positive news too. Good luck with the rucaparib. And now you must put on some weight to stand you in good stead.

All the best!

Alifit profile image
Alifit

Good to hear from you - I hope all goes well xx

SuziTench1 profile image
SuziTench1

Glad your back Suzanne.. 😁😁 . Yes get that gremlin .. kick its ass 🏋️‍♀️🏋️‍♀️🏋️‍♀️🏋️‍♀️. Try shakes protein ones to help with weight gain .. worked for me . Hugs and kisses xx

Delighted to hear from you and that you are more comfortable. So glad Hammersmith will get you a Parp and hope it kicks those buggers into oblivion.

ShropshireJo profile image
ShropshireJo

So good to hear from you Suzanne and three cheers for your positive attitude. I find it’s a constant struggle to stay positive so am very impressed by you. Hope all goes well with your stent and good luck with rucaribib. Sending love and hugs. Jo 🌺🌼🌸🌻🌹

ZenaJ profile image
ZenaJ

Hi Suzanne. I'm so glad something is being done at last to help you. I'm sure once you start eating again you'll be feeling so much better and stronger.

Thanks for keeping in touch with us all. I do worry about you.

Love and hugs, Zena x

SCWI profile image
SCWI

Hi Suzanne

It’s so lovely to hear from you. I have always heard that the Hammersmith is a great hospital for people like us. So glad they have a such a good plan in place for you. I Think about you often. Keep us posted. Hopefully you will get the parp Inhibitor going soon. I have just started one. Much love Sophia xx

Yoshbosh profile image
Yoshbosh

Wonderful to hear from you, Suzanne. I think of you often, so it's nice to be able to read a more positive post from you. I'm glad the Hammersmith is able to offer you a Parp. I'll be keeping everything crossed for you that it works. I'll be asking my oncologist about 'what next' for me when I have my half-way review with her in a couple of weeks time.

Lots of love and hugs to you,

Vicki xxx

Hi Suzanne, I'm glad you posted to let us know how you are , I'm always thinking of you

,It would be good if you an eat and get your strength back as you said we need that strength to keep going and I know you will ..Take care my friend Lorraine xx

gmc920 profile image
gmc920

Thanks so much for the update, Suzanne! Wishing you all the best in regaining your strength and then starting the rucaparib. Sending hugs and positive energy 🤗🙏🏻

xx Gina

Lily-Anne profile image
Lily-Anne

Much love 🤗

Been doing my best to keep up here and FB. You’re doing so well. I’m so squeamish I’d never cope as well as you. Power to you.

LA xx

LittleSan profile image
LittleSan

How good to hear from you and with positive news too. Hope the stent does its job and you go from strength to strength. 💐💐💐. Sandra xx

Mumtazbegum profile image
Mumtazbegum

So good to see your update.Stay positive and take care.

Chick44nzrn profile image
Chick44nzrn

Dear Suzanne , such positive news that your onco team are vigorously fighting your corner and despite all , you are determined to keep up the fight . After another sleepless feverish night , your post this morning was a wonderful early am pick me up for all of us. Anorexia is a battle having lost 2 stone , I’m with you on that . despite being bombarded with “ tempting healthy foods “ by family , friends etc . Juicy grapes and berries seem to work as do smoothies

In between lots of water either filtered or fizzy. Do you find every now and again you can unexpectedly say eat a soft boiled

Egg ? Very thin vogels bread with marmite

Did go down also .

Keep us in touch you brave warrior . All on your side and sending you big hugs and much love .

Denise xx

Neona profile image
Neona

Great to hear from you- rucaparib sounds good- wishing you good luck on this treatment.

GINI-54 profile image
GINI-54

Your doing a fantastic job of fighting this beastie, and long may you continue. Keep up with the positive attitude Suzanne. I often think about you. Xxx

marylondon profile image
marylondon

So glad to read that some positive action is underway . Am so impressed with your determination. Fingers crossed for the Parp as well .

Have you tried those high calorie , high protein powders you can dissolve in drinks ? Your District Nurse could ask your Gp for a prescription .

♥️

Cropcrop profile image
Cropcrop

It’s so very nice to hear from you lovely. The stent sounds like a positive step and hopefully the rucapirb has the desired results. I’m so pleased you've been given some possibilities to help you beating this bloody awful disease. I hope you’re able to eat and build up some strength in readiness for the treatment.

Keep strong lovely lady, as always we’re here for you. Sending love and gentle hugs ❤️Xx Jane

Welshandproud profile image
Welshandproud

So pleased to hear that hammersmith are helping and sending you a big virtual hug.

If only i could send you some of my extra weight I would love to help you out. Hopefully the rucapirb will buck you up a bit and try some of the ensure drinks as the others have suggested. Sending lots of love. Sian

thomas62 profile image
thomas62

So glad you were able to get to the Hammersmith and that they have been able to help you. Hopefully you will be able to have the rucapirib. Keep positive.

harpist_UK profile image
harpist_UK

Amazing tenacity, Suzanne! And you've opened more doors - well done! All the best x

Colman profile image
Colman

Keep fighting Suzanne xxx

Claire

Maxjor profile image
Maxjor

I check almost daily on all the lovely ladies (and gents) here but LOOKING for a post from you (and Kryssy--really would like to know how she is doing as well). SO GLAD to read you are getting other opinions and something is being done. What happened to your blockage? Did it resolve itself or did you get help? I guess losing three stone means maybe it is not unblocked? Get your wheelchair on a plane and get over here and I will make you try medical marajuana to give you a giant appetite--I will fatten you up to go back!

Really though--I am glad there is hope and it sounds like more than that---keep trying to get the calories down Suzanne. We need you---and it sounds like positive steps are being made. I am still on my PARP going on 8 months so I have high hopes for you! Thinking of you always Suzanne. oxoxox Judy

jools53 profile image
jools53

great news Suzanne,stay strong sending big hugs xxx

Ge0rg1na profile image
Ge0rg1na

Thank you for the update and the replies will I'm sure give you an extra boost to your determination. Wishing you all the best and I hope the PARP brings the results your onc is hoping for. Gina

Harrygirl profile image
Harrygirl

Glad to hear they inserted a stent-hope making your stomach more comfortable will help you want to eat. As far as the build-up products, have you tried the puddings as well? You may have already this information, but sometimes the build-up drinks are more tempting when taken in different forms such as making milkshakes, popsicles or different recipes with them-do you have someone around who could experiment with them for you?

I’m wishing you all the best in your continued struggle against this beast. xx

delia2 profile image
delia2

Happy to know you have hope and that niraparib will be the ticket. I hope you can gain some weight and build up a bit of strength! Xoxo

Rlenesue profile image
Rlenesue

Oh my, you have lost quite a bit of weight. The cancer gremlin, as you accurately describe it, will not defeat you, as you have a wonderfully positive attitude. Hugs xxoo

Bettyxxx profile image
Bettyxxx

That sounds like positive news xx hope it goes well for you and you manage to get your strength up again xx good luck x

Solange profile image
Solange

So glad you have more hope now, Suzanne. Hope everything will be sorted out soon and you'll be able to eat. And regain some strength. Thinking of you, love and a hug, Solange😊

kat98116 profile image
kat98116

As someone said, your tenacity is a marvel! So glad to hear from you. Hang in there.....yes, we need you! Hugs from cold, rainy Seattle.

sticky3006 profile image
sticky3006

Amazing Suzanne. Little steps to take and you'll hopefully be on the up soon. Hammersmith has a great reputation and it sounds like they have a good plan for you. Take care xx

Lewisriley47 profile image
Lewisriley47

Great Suzanne stay strong and positive and l hope the parp inhibitor keeps the beast at Bay x for a very long time!

Maus123 profile image
Maus123

Keep up the hope, Suzanne. Great news about the parp inhibitor!

How are you doing with the stent.. is it bearable? Can you eat now? Maybe even some of those high calorie nutrition drinks..? Hugs & strength. Maus

Katiebairdie profile image
Katiebairdie

It’s really good to hear from you. Hammersmith hospital has a great reputation and they seem to be doing good things for you.

Hope the inhibitors work quickly for you and you get to enjoy Xmas

xxx

Seasun36-uk profile image
Seasun36-uk

Love & hugs to you Suzanne 🌻🌼🌸🌺🌹🌷💐

Good luck with the new drug - keep kicking. Hugs Dawn

jools53 profile image
jools53

God bless you Suzanne! There’s always something round the corner! My partners favourite words! Hubie to be 🙏

Btte profile image
Btte

Great news, build yourself up to enjoy all the goodies at Christmas. Love Bridie

jools53 profile image
jools53

That’s the spirit lovely lady! Is your next chemo 2 or 3rd ? I’m heading for 3rd and hoping to put it off until end of January! Not sure how much pain to expect or symptoms to show! 🙏 jelly & custard and all goodies should be on your list! Thinking of you jools 💐💐

WoodyB profile image
WoodyB

Hello Suzanne, sorry for being so late to the party - we have been away on holiday. You're having a rough rough time but really pleased to hear that Hammersmith are doing good things for you. Wishing you the very best of luck for your scan next week and your next treatment options. Sending love to a lovely lady, Woody & Suzanne xx

Zena41 profile image
Zena41

This is amazing lovely. Hammersmith are the bees knees!!

ovarian1c profile image
ovarian1c

Hang in there sweetheart, don’t let go! 🙏🏽

Harleeboo profile image
Harleeboo

Where are you Suzanne ,hope it's working for you 💐

Lind58 profile image
Lind58 in reply to Harleeboo

I have been thinking the same, hope she’s okay....

Jane420 profile image
Jane420 in reply to Harleeboo

Suzanne passed away in December 2018

Harleeboo profile image
Harleeboo in reply to Jane420

Oh so sad to hear this ,thought the new treatment would have given her longer,had seen no news to this sad post 😘 Hope you are coping ok

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