Shock but I’m ok I think no I am

[Shellygirl]

Hi everyone not visited for long time as I’ve been getting in with life as we now know it. Although I have read all your stories I have rarely contributed. I now find myself with a new ca125 result that has jumped from 9 to 26 drs day let’s wait three months see what happens ok so I wait but how I’m terrified my story so mirrored Claire’s and has lots of you will remember Claire you understand my feelings 😢😢😅😅

[Emsymits]

Keep positive and don't panic! It could be an infection or anything.

Em

x

[Shellygirl in reply to Emsymits]

I know I do but sometimes it’s a bit of a smack in the face ... I need to get a grip thank you 😊

[Lyndy]

Woah there Shellygirl...everyone is different and their cancer behaves differently. Your Onc is right...watch and wait, your numbers aren’t over 35...could just be a blip. My ca125 was higher than yours back in January but I still have no symptoms..so enjoying myself....not on treatment xx

[Shellygirl in reply to Lyndy]

I’m going to do the same thank you 😊

[GoldenGourd]

I had a shock today with my CA125 near as damnit quadrupling since the previous test two weeks ago (465 to 1685). Went into one big style. Had a 5 week break from the parp inhibitor trial as my bloods were too low, so this is what the cancer did while it had the chance, the wily #”!§ er. My trial nurse is so lovely and said things need time to resolve, to keep taking the parp tablets and not worry (oh alright then) as things are mainly stable. So I have tried, went in the garden and took it out on the weeds which have had free rein for two years. And although I totally get what you are saying Shelleygirl and I too remember Clare, I think we have to go on the que sera, sera song and dance routine with Doris Day and see how things pan out. So try and take the long view and let yourself get distracted. For me it is the rest of The Crown, more gardening and night swimming at an open pool near us, with live music and cake. Oh yes, ladies, and especially lovely Shelleygirl, let’s face the music and dance. Xxxx

Netti

[Elizabethe in reply to GoldenGourd]

Yes!! Netti what a fabulous reply poss my favourite ever on this site. Need to have a break from here really, keep getting drawn back in but so glad I saw this it has lifted me right up! Singing and metaphorically dancing round the kitchen now ... Shelleygirl, those are some wise words of wisdom from Netti, hope they’ve helped you feel better xx

[GoldenGourd in reply to Elizabethe]

We are always here to help each other and I’m so glad you found my post a booster. I have found it hard to like going on this site recently for a number of reasons, but the old names and faves keep me going back just like you do. Here’s to us Elizabethe and all Karaoke style wooden spoon crooners everywhere. X

[Shellygirl in reply to Elizabethe]

Yes they have I knew the ladies old friends would help I’ve had a break as the newsfeed can get sad but I do know I’m been over dramatic 🙈🙈

[Shellygirl]

Hi sweetheart thank you for your reply ... love the crown and I do know I’m over reacting ... we are dealt the hand and it’s the way we deal it that makes us who we are I’m facing the music and dancing 🕺 xx

[GoldenGourd in reply to Shellygirl]

Yay

[Nancy222 in reply to Shellygirl]

Hi Shelly,

I was introduced to the term "wobble" on this site, and find it most descriptive. Most of the time we carry on and do what we have to do. But every once in a while, we have a wobble. Nothing to do with over reacting No matter how you phrase it, this news of yours is a concern. Big hug.

And everyone's health is so different. Your path and Clare's might have some resemblance, but your outcome could be different. Don't borrow trouble, okay? XXOO

[Shellygirl in reply to Nancy222]

Thank you Clare helped so many of us including me I do tend to focus on her journey as we had the same diagnosis. Loving the wobble and don’t borrow trouble it’s opened my eyes this is my path and I don’t need to make it any rockier 😊😊 hug gratefully received 😍

[Yoshbosh]

Hi Shelly,

You’ve had a big shock, but try not to panic (haha). Three months is a blink of an eye in cancer terms. Your doctor isn’t worrying, so try not to either.

Lots of love,

Vicki xxx

[Shellygirl in reply to Yoshbosh]

Thanks Vicki you are so right love you 😍

[caf132]

Hi Shelly- it’s normal to feel as you do. Watch and wait is easier said than done. On that note, my friend is 12 months out of chemo stage 3c. Her CA125 jumped too. She was so scared and it ended going back down the next month. We all worry so about the slightest ache and pain or blood test. Hang in there.

Xx Carol

[Shellygirl]

It’s horrible isn’t it but your kind words have made me feel better 😊

[airfemale]

Shelleygirl sometimes this website does my head in as well. I come and go and try to help where I can. Try to forget as best you can for a few days and wait and see. I think some sage advice has been offered. Sending love Sharon.

[Shellygirl in reply to airfemale]

Thank you 😊

[ellseybellsey]

Shelleygirl,

It’s easy to say don’t worry but I believe a lot of women do get very anxious every time the CA125 rises, I know I did.

Hopefully it is something else that’s causing it to rise.

Ellsey xx

[Shellygirl in reply to ellseybellsey]

It’s so hard not to panic my sensible head says it’s nothing but the numb feeling of omg is it back is a constant worry 🙈

[Eriksendi]

I know how you are feeling mine has jumped from 11 to 29!! Hoping it’s a blip. My team have organised a retest in one month. Hopefully I will know more then. Let me know how you get on as well .

[Shellygirl in reply to Eriksendi]

Really my team have not suggested this at all I might get in touch with my gp as a three month wait is huge to me at moment 😊 please let me know how you get on too x

[Cropcrop]

Hello lovely, welcome back it’s lovely to see you again, I do understand your feelings but Claire’s story isn’t yours, we’re all different and your doctor isn’t worried so please try not to worry. You know your CA125 can rise for reasons other than OC however if it is because of this bloody disease your doctor is already watching you so the support is already there and, of course, we’re all here for you too.

Big hugs of encouragement and lots of love ❤️Xx Jane

[Shellygirl in reply to Cropcrop]

Thank you I’m crying now but in a good way 😢😢 it’s awful disease but thank to the support and kindness we are made string to stand up and fight 😊

[Maxjor]

Hi Shellygirl---you know they also say if it is a relapse (and chances are it may not be) then waiting is said to not change outcome of the next treatment in most cases, so try to think of the waiting as a break from treatment. I don't know if I could do three months--maybe ask for a ca125 in between? But only if you find yourself obsessing instead of focusing more on enjoying. I vacillate between the two! xoxoxxo

[Shellygirl in reply to Maxjor]

Me too I’m not sure at the moment ... I don’t want to wait three months it seems like an age .. think I’m going to speak to my gp 😊

[Caroles1]

Hi love,

We have spoken already, but it wouldn’t hurt to try and get another ca125 from your doctor, just make sure you feel tip top, because as I said mine went up because of a virul infection, my onc told me not to come to him for bloods if I didn’t feel great......but I still did and now I have to wait until August to make sure it was just a blip.

Mine jumped from 8 to 25.

You know I wish you all the best,

Carole xxx

[Shellygirl in reply to Caroles1]

I’ve just put call in to gp to try to get an earlier test. You feel so rubbish some of the time and don’t realise that you may have an infection so fingers crossed that’s what we have got. OC scares the bejesus out of us and i think that’s where our head will always turn at the slightest hint of pain etc ... horrible disease 😢😢 sending hugs and positive vibes shelly xxxx

[amandanewe2]

xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxhugs

[Shellygirl in reply to amandanewe2]

Thank you 😊 very much needed xx

[Cathy90]

Have you had more bloods taken x

[Shellygirl in reply to Cathy90]

Not as yet I thought I would wait a couple of weeks and then redone 😊

[Cathy90 in reply to Shellygirl]

Hopefully it will be a simple infection that's caused the rise in the CA125, keep us posted x

[Cathy90]

If you don't mind me asking, why did you get a CA125 done Shellygirl xx

[Shellygirl in reply to Cathy90]

It was my three monthly check up I’ve been Ned for nearly two years. I don’t mind you asking at all 😊

[Cathy90 in reply to Shellygirl]

That's great you get that done, I just get examined every three months and doctor asks how I am xx I'm sure all will be fine Shellygirl. Please let us know how you get on

[Cathy90]

Hi Shellygirl,

Any news on your bloods yet x

[Shellygirl in reply to Cathy90]

Hi thank you for asking 😊 I’m going to have them taken on Wednesday so should have results Friday 🤞🤞

[Cathy90]

Good, keep us posted. Good luck

[Shellygirl in reply to Cathy90]

Thank you I Will do I’ve had my bloods done today so should know something by the end of the week 🤞🤞

[Shellygirl in reply to Cathy90]

My level has dropped back to 13 so hope it was just a blip 😊 feeling calmer not confident as yet but reassured xx

[Cathy90]

Oh Shellygirl so so pleased for you, what a relief, I understand what your saying as being reassured and still not confident. I'm sure all will be well from now on xx take care and keep in touch

[Shellygirl in reply to Cathy90]

Thank you so much 😊