Multiloculated cyst 🤔

[Donusgul]

Hello, everyone I’d like some advice please, I’m 27 years old, with two beautiful children 🙈 I have previously been diagnosed with endometriosis I’ve had two laps in the past which was about 2 years ago. This year I’ve been experiencing severe pain in my left ovary sometimes radiating to my right ovary. I’ve lost about 4kgs or more in this past month. I’m really struggling to eat, and I feel nauseated all the time. I’ve had a scan and blood tests done. I’ve also had a ca125 test which was in normal range (12). I’ve added the report of the scan to the photos. What does everyone think? Any advice or any similar stories or outcomes is greatly appreciated. Please help me out with the report I’m very confused. Also I wanted to add that during the scan the sonograther said to me she can see a very small borderline cyst 🤔 what is this? It doesn’t say anything on the report about boderline cyst! Any help/advice please

[Sunfleury-UK]

Hi Donusgul, are you in the US? I ask because health care systems work differently. Are you seeing a consultant or GP to discuss your scan results? I do hope so as it must be incredibly worrying having the scan to decipher for yourself and as you have ongoing symptoms, its really important that you have appropriate expert medical care.

You've joined a forum for people affected by ovarian cancer, so you will find our experiences here come from a very particular perspective. It's good news that your ca125 is low (especially given your age and having endometriosis) though it isn't a test which is 100% conclusive. There have been quite a few women in their 20's & 30's with endometriosis who have shared similar symptoms and concerns here and whose fears have been unfounded. Perhaps as well as posting here, it might be worth also joining one of the Endometriosis groups on HealthUnlocked and asking the same question so you have some balance.

The comment by your sonographer about 'borderline cysts' is concerning because there are such things as 'borderline ovarian tumours' HOWEVER these would not be diagnosed in this way.

With regards to OvCa, the very best thing to do is to get a symptom diary (there are lots online eg Ovacome, Target Ovarian Cancer) and fill it in... the ongoing range of symptoms & their frequency and persistancy is important and it helps doctors if they are given this information. Ovarian cancer is relatively rare and most often occurs in women who are post-menopausal however it can affect younger women and there are considerable benefits when caught at an early stage.

Given the scan, your symptoms and concerns my advice would be to seek a referral asap. Its very likely that your fears are not realised but so much better to follow-up and get appropriate treatment, wishing you hope and strength. Sx

[Sunfleury-UK in reply to Sunfleury-UK]

link here to HealthUnlocked Endometriosis forum: healthunlocked.com/endometr...

[Donusgul in reply to Sunfleury-UK]

Hello sunfleury, thank you so much for your reply, it really means a lot. I am in the uk. My GP has sent me to see a gynaecologist but not an urgent referral 6-8 weeks wait I think it is, it’s been about 6 weeks already. I’ve been having these symptoms for 2 months now maybe more. It’s getting worse by day. I’m literally going to the GP every week or 2 because I can’t stand it anymore. I also didn’t add that I had not had a period for 6 months, but last month I was having bleeding (definitely not periods) I say bleeding because the bleeding was coming suddenly and forcefully it lasted for about 2 weeks, I also bleed 2/3 times during this 2 weeks during intercouse and after. I’ve woken up with bleeding. I’ve even had blood stained discharge. Thank you for the endometriosis page link, I’ll be going on there now. I’m so confused, I’m so tired all the time and everyone around me who knows me well or not even much have asked me several times if I’m ill because I’ve lost a lot of weight that is very noticeable even to people I’ve only meet once or twice. This is the first time ever I’m experiencing something like this and everytime I use google I don’t find anything helpful. Thank you so much for taking your time and replying back 🙏🏻 That really means a lot to me

[Sunfleury-UK in reply to Donusgul]

O gosh, its no problem and I'm so sorry to hear all you're going through. I would really encourage you to either call Anna OvacomeSupport (0800 008 7054) or Tracy at The Eve Appeal (0808 802 0019) sorry to recommend another HU group but AskEve also worth posting in... Google has its uses but either of these helplines will give you access to really good expert and supportive advice. Very best wishes, Sx

[Donusgul in reply to Sunfleury-UK]

Thank you so much for your help and advice 🙏🏻 Even though I’ve been previously diagnosed with endo this is all very new to me, This is the first time I’ve asked for help and advice on a forum and I’m so happy I found this site. So many useful information. Thank you once again xx

[OvacomeSupport Partner My Ovacome Team]

Dear Donusgul

You've received a lot of useful information from Sunfleury-UK and I just wanted to add please do give me a call as she suggests if you want to talk anything through. Endometriosis UK, who Sunfleury gave you the forum link to, also have a helpline which includes weekend and evening hours if my hours (10am-5pm Monday-Friday) aren't convenient for you.

Please do get in touch if you need any support.

Best wishes

Anna

Ovacome Support Service Manager

[Donusgul in reply to OvacomeSupport]

Hello Anna, thank you very much. Honestly this is the closest I’ve ever been with any kind of support and this really means a lot to me. Sunfleury has given me great information too. At the moment I’m just waiting for my appointment hopefully that should come within a week or two 🙏🏻