My Ovacome
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Strong pain 11 months after surgery

Hi all,

I wanted to write here earlier last week but talked myself out of it. I have got used to aches and pains and try not worry about them mostly but in the last 3 weeks i have been getting a lot of pain (sharp twinges). I did not used to get these kind of pains. I am getting severe bloating as well and also feels like the pain is spreading. I am now beginning to worry about this a lot. Has anyone experienced something similar? Im getting an MRI done next week and am worried sick :(

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Hello Lollie

After my treatment and surgery I got pain, twinges and bloating for two years and I still do. It is so easy to imagine the worst. I went to see my surgeon when this happened and he would give me a pelvic examination and I always came away reassured. After massive surgery there are often surgical adhesions which are left. How is your CA125 level? I am pleased you are having a scan, I do hope it will be alright for you. Please try not to worry. Have you tried a meditation app on your phone? Headspace is a good one and you can try it out for free.

All best wishes, Sophia x

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Thank you Sophia, really good advice . Headspace is important. My results came back as all clear. Thank God xx

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Lollie this sounds just like me! I had my surgery in Aug 16 and for the last 4/5 weeks have had abdominal discomfort/bloating and got myself into a real state of panic. Finally last week saw my gp who examined me and reassured me all was fine. Then I poured out all my worries and she said she felt I needed help with the anxiety levels so has put me on Citalopram just 10mgs and already I am feeling so much better. The discomfort has gone and I am sleeping better too. I didn't want to go down that road, but I realised I am not coping and if hopefully I live a long time with this diagnosis hanging over me then I need to do something about it. Hope this helps you, I know how scared you must be feeling. xx

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Thank you for the reassurance. I also had bloating and it freaked me out. I also cant stop eating (which is something that happened last year leading up to the cancer) but had scan and all clear one year on . Hope you're well and feeling less stressed now cx

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Hi there, I had my operation in August 2016 and had lots of discomforts and pain in my abdomen. They have become gradually less intrusive, but recently my CA125 has started to go up and and I am now experiencing more discomfort. I’m having a scan this week which will be compared to the one I had at the end of September (which showed I was stable) to see if there is any progression. Last night I was so fed up with the discomfort and niggly pains that I went through the contents of my medicine cabinet and found some Colpermin - essentially peppermint capsules that dissolve in the intestines rather than the stomach I took one and lo and behold, I feel much better this morning!

I hope the MRI shows there is nothing to worry about, but you can contact your team or Nurse Specialist before the scan as they may be able to recommend something to relieve the pain and talk you through your anxieties.

I also use Headspace to relieve my anxieties.

I have found that posting on here is really therapeutic and it means that you can get things off your chest to supportive, empathetic but anonymous people.

I hope all is well, best wishes, Ali x

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Thank you Ali i think anxiety was a lot to do with it. Anxiety is something i must conquer....

it always worse when it's time to get scanned xx

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A year after surgery I started getting terribly dipilitating pain which was repeatedly dismissed by my oncologist as there was no sign of cancer. When I mentioned it to the nurse she suggested it may be bowel adhesions as a result of the surgery. She suggested that I have a liquid only diet and also recommend Buscapon for the treatment of spasms. The liquid only diet seemed to work if you can tolerate having soup everyday. I now have a collection of recipes and freezer full of soup boxes for when it is particularly bad. I have also gradually reintroduced soft foods but absolutely no fibre as this really does make the pain worse.

I hope this helps

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Have u got ur mri results yet? I'm new to this forum. Have been recently through 2 surgeries. Final diagnosis 1c endometriod adenocarcinoma. Cancer was spilled during surgery. Now I have been left with daunting choise to have chemo or not...?

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Hi Lara,

My cancer had spilled over 3 days so if yours spilled during surgery, i believe you'll be alright. That is what an oncologist surgeon told me when i asked about this risk.

So don't let this rattle you too much. I kmow what you're going through. Docs will say things and it will terrify you. But i sought second opinions from ovarian cancer specialists worked at royal marsden and they seemed more relaxed about it.

I did not have chemo and i am ok one year on - but this decision was backed by surgery results, biopsies and washings which did not show any cancer. Otherwise i would have had the chemo.

Hope you're alright and feel free to ask any more questions xxx

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Mine had spilt over 3 days ,so I,t was nice to read your post and that your still need after a year x

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