Clinical trial: My sister is going to start a... - My Ovacome

My Ovacome

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Clinical trial

Sisafighter profile image
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My sister is going to start a clinical trial using Keytruda and Listeria. Has anyone had any experience with this trial?

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Sisafighter
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angeladale profile image
angeladale

Hi there : I have been on Keytruda but not Listeria ....Started last August , came off it end of May . Very tired to begin with and came off it because of reactions late April but in that time , disease has become stable , with growth area s knocked back somewhat .

At the moment , I feel really very good on the good days , a bit ughy on the odd days ....and now on a watch and wait for three months .

I do wonder about Listeria ...not heard of it but will look it up !

Good luck wishes being sent x

Sisafighter profile image
Sisafighter in reply to angeladale

Thanks for the response. What were your reactions in April that caused you to come off Keytruda?

angeladale profile image
angeladale in reply to Sisafighter

Three bouts of appalling vomiting and diarrhoea , accompanied by ghastly , all over rash . This Demonstrated that I had reached a toxicity level with the drug in my system . Unlike chemo , which is flushed out of your body after about 36 hours , the damage having been done , keytruda stays in the body and teaches your immune system to fight the cancer now having recognised it for what it is . A garbled understanding here , but approximately what's going on ! If they had continued with the infusion anaphaltic shock could have followed . You will be watched like a hawk for all of this .

It has been very effective for me , so far , and I would go for it !

Sisafighter profile image
Sisafighter in reply to angeladale

I am going to be with my sister while she receivesthe trial. Thanks for your info. God bless you and keep fighting!

capetownval profile image
capetownval

Hi I am on just the keytruda trial

For bowel cancer . 12 infusions to date and now in radiological remmison . In the Uk

Sisafighter profile image
Sisafighter in reply to capetownval

Thanks. Good luck to you!

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