Stage 3c now in spleen : Hi all what a mess this... - My Ovacome

My Ovacome

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Stage 3c now in spleen

kaza1 profile image
28 Replies

Hi all what a mess this all is !!!

Decided after reading loads of material about how bad chemo is for you (I've had 2 courses

Decided to go down the natural route vitamins cannabis oil etc

Anyway latest blood and scan got a tumour on my spleen now bloods have gone up double in 6 weeks and consultant said I need to start on chemo I'm totally confused with everything

Any help appreciated x

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kaza1 profile image
kaza1
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28 Replies
Lyndy profile image
Lyndy

Hi Kaza

Chemo is very toxic it's true but cancer is also very bad for you. Don't be confused...accept the chemo before your cancer starts making your decisions for you.

Lots of love Lyndy

85live4ever profile image
85live4ever in reply to Lyndy

Hi Kaza, I have to agree with Lyndy. Take the chemo & when you are in a better place then consider other complementary therapies. Take care Cindyxx

Tesla_7US profile image
Tesla_7US in reply to Lyndy

Lyndy, thank you. There's no covering up that ovca needs to be fought chemically AND surgically. It's a nightmare disease with lethal consequences if not fought with equally lethal chemo.

ZenaJ profile image
ZenaJ in reply to Lyndy

I totally agree with you. x

Cropcrop profile image
Cropcrop

Hi Kaza1. I'm sorry you've had this rubbish news.

Whilst chemo is really toxic it probably won't kill you (some people do have dramatic responses to chemo though) whereas the cancer most probably will kill you, I'd go for the chemo every time if I was you, I did it 3 years ago and whilst I have long lasting side effects from it, I'm still here loving life ❤️Xx Jane

I think if Chemo worked for you before it will again. So I would say go for .it

kristinaapril profile image
kristinaapril

Hi Kaza,

While Chemo is toxic to your body, it is also toxic to chemo cells. It seems like right now that the cancer cells are multiplying, and I would start chemo along with possible complimentary treatments.

Also, is the cancer ON your spleen or IN your spleen. Depending on where else your cancer is, if it is ON the spleen, you may be able to have surgery to remove it also.

Best of luck,

Kris x

kaza1 profile image
kaza1 in reply to kristinaapril

I think it must be in my spleen as they said cannot have surgery

Thank you for your advice x

kristinaapril profile image
kristinaapril in reply to kaza1

Have you asked for a second opinion to confirm this? My mother was believed to have spread inside her spleen (due to it being rather enlarged) - she had it removed, though it pathology stated cancer was only on it.

Do you know where else your spread is? There have been quite a few lovely ladies on this forum who have gotten a secondary surgery and had good results.

kaza1 profile image
kaza1 in reply to kristinaapril

Thank you I'm always bothered about asking for a second opinion in case it upsets my oncologist x

Biscuitqueen profile image
Biscuitqueen in reply to kaza1

I totally understand your fears about not wanting to upset your oncologist but just let them know that you want to explore your options - it's your life after all and every doctor has their own opinion...they'll understand :)

Tesla_7US profile image
Tesla_7US in reply to kaza1

It's YOUR LIFE. Your doctor is a professional. Get a second opinion. Doctors are not gods. They make mistakes. You must advocate for yourself. The system will not do that for you.

Tesla_7US profile image
Tesla_7US in reply to kaza1

I had cancer ON my spleen so my surgeon removed my spleen. Currently 11 months NED. Get a second opinion.

LesleyGreengran profile image
LesleyGreengran in reply to kristinaapril

Spleens can be taken out. Eg following accidents cos they bleed so much when damaged.

LesleyGreengran profile image
LesleyGreengran

'natural' (eating cannabis isn't) didn't work for me but good luck

Yoshbosh profile image
Yoshbosh

Hi Kaza

If you are happy to give chemo another go, then go for it. Why not consider the alternative things as your 'clean up' process once chemo finishes? (Or take whatever is appropriate whilst still on chemo, as some vitamins and supplements aren't helpful, whilst others are).

Good luck 🍀

Yosh x

Biscuitqueen profile image
Biscuitqueen

Hello! As others have said, go for the chemo and then speak to your oncologist about taking supplements and vitamins alongside maybe? Hope all goes well for you, it's scary to go on chemo but when you do go on it, visualise the chemo going into your body and targeting the nasty cancer cells xx

Hi Kaza, I'm with the other ladies I would take the chemo. yes it.s not easy but this is a aggressive beast we are fighting, I'm on my 4th line treatment in 21/2 years and when I do stop chemo my 125 just goes up, This is a decision we need to make for our self's but because this is a life and death decision we need the help of professionals to help in that decision.

Best wishes and I hope you choose the right path for you..Lorraine💙💙

PS, go for the second opinion my oncologist was happy for me to have one ,then I came back to her knowing she was on the right path for my treatment.

Tesla_7US profile image
Tesla_7US

Kaza, did you already have debulking surgery? Naturopathic remedies do not cure ovarian cancer. Sadly, only debulking surgery plus chemo can arrest it at 3C. Read my profile for more information.

kaza1 profile image
kaza1 in reply to Tesla_7US

Thank you I will x

Peggy76 profile image
Peggy76

Hello Kari......Please be advised by your Doctor, unpleasant I know but they are doing it for your best interest. Be strong &. Know I'm always hear if you need a chat .

God bless Peggy 😘

111173 profile image
111173

I had my spleen removed in 2014, along with all my gynae bits. Have had three lines of chemo as well. At present I am feeling fine and living a mainly normal life. You can live without your spleen, taking penicillin to avoid infections. Get another opinion.

Lynne

Neona57 profile image
Neona57

My spleen was removed during my debulking surgery as there was a tumour both in and on the spleen. I definately think you should ask why they don't want to operate.

kaza1 profile image
kaza1 in reply to Neona57

They said if they remove the spleen it will only grow somewhere else so it's not worth it x

Tesla_7US profile image
Tesla_7US

kaza, that's not a good enough reason. For goodness sake get a second opinion! That's like saying "you've got cancer, you're dead already."

ZenaJ profile image
ZenaJ

Take the treatment. It gives you a good chance. I have/had stage 3C and that was four years ago. Take their recommendations they know what they're talking about.

Best wishes, xxx Zena

Hi

I had cancer in my spleen and liver two years ago at initial diagnosis and I had neo adjuvant therapy before abdominal surgery. At the time of the surgery, the cancer had gone from liver and spleen due to the chemo I had prior to it. (Carbo/Taxol). I agree with the comments here, go for the chemo , even though we feel it's toxic it does great work also!

All the best

thomas62 profile image
thomas62

Kaza,

Please get a 2nd opinion at a major cancer centre. I agree you need to go for the chemo!

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