Gene testing for cancer: Hi all. Take a look at... - My Ovacome

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Gene testing for cancer

Emsymits profile image
9 Replies

Hi all. Take a look at today's Times. Article about how health chief aiming for gene testing within 5 years for tailored cancer treatment. Hope for us all?

Em

X

Not sure this link will work as sent to me by someone with a subscription but worth a try

thetimes.co.uk/article/give...

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Emsymits profile image
Emsymits
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9 Replies
Katmal-UK profile image
Katmal-UK

Hi Em I read that, looks promising then again at £700 per person I wonder if they will? I suppose there is always the option to pay for your own (assuming someone can afford it). Kathy xx

Yoshbosh profile image
Yoshbosh

I heard about this on the radio. It sounds great, and would be a massive step forward if it meant they actually targeted the treatment to what will work best. Might even save the NHS some money in the long run, rather than wasting time on drugs that don't work.

85live4ever profile image
85live4ever

Hi EM, sounds good I tried the link but it didn't work. My tablet isn't great but I will look into it.

Why will it take 5 years? I am sure it's on offer in other countries now or have I got that wrong. Maybe having the NHS in the UK means the cost of the testing will be high so we have to wait longer. Thanks for the post take care Cindyxx

bibs73 profile image
bibs73

In Scotland they test every lady diagnosed with high grade serous OC for gene mutations. They doing a study or something.

Although I have low grade serous I got tested for both BRACAs, the TP 53 mutation and a couple of others I can't remember. All came back negative.

The genetics department was really good. I think there's lots of potential in the future and in Scotland at least they seam to have some funding for it.

Tesla_7US profile image
Tesla_7US

couldn't get link to work. will try to google article. In US insurance pays for this test. For people like me, with "no known genetic mutation" that's really not much help. Hopefully they will discover more genetic markers in the next few years.

Yoshbosh profile image
Yoshbosh

I got the impression that it would be a bit more than the usual BRCA testing that we have - more about tumour profiling to understand which drugs would be most effective. You can pay for that privately at the moment, but whether anyone would act on the results is another thing. If that's the case, then rather than go through a period of hit and miss with some types of chemo, you could go straight to what will work best, whether that would be chemo, immunotherapy, PARPs etc etc.

capetownval profile image
capetownval

Really promising , luckily for me after kidney cancer in 2009 , then colon cancer in 2015 , my lovely oncologist tested my genes. I have a mismatch gene and have been on an immunotherapy drug trial . It's working!

But the drug only works on the mismatch gene apparently.

So I have been unluckily lucky .

It's a great idea .

Emsymits profile image
Emsymits

That's great news and just shows that finding out what drugs work through gene profiling sounds like the way forward. I agree with Yoshbosh though that the difficulty may be getting action based on results if u pay privately.

X

Neona57 profile image
Neona57

I was sent for gene counselling but was told I didn't need the test. I did think that they might as well have tested me.

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