Neuropathy: Hi everyone. I have just finished... - My Ovacome

My Ovacome

17,618 members19,895 posts

Neuropathy

Heatherslade profile image
12 Replies

Hi everyone. I have just finished carboplatin/taxol treatment for OC and am suffering quite badly with neuropathy especially to ends of feet. I had some remains of neuropathy after chemo for bowel cancer a year ago so that has not helped. Just wondering if anybody knows of ways to help it subside. Have massages etc. I seem to remember a post that mentioned magnesium tablets? Any recommendations would be great.

Written by
Heatherslade profile image
Heatherslade
To view profiles and participate in discussions please or .
Read more about...
12 Replies
angelina profile image
angelina

Yes me too. Don't know any solution my oncologist told me I would probably have it forever as it is nerve damage. It is now 41/2 yrs since I finished chemo my only solution is sensible shoes and I buy a size bigger than before.

Hope someone else has more info on this problem

My best wishes

Lynda x🌷x

Caroles1 profile image
Caroles1

I don't have too much trouble myself, but I have heard that Epsom salts help and also rolling a small ball through your toes.

I'm sure you will get more advice from the lovely ladies xxx

Flamingobeef18 profile image
Flamingobeef18

Hi

I had some neuropathy of my toes following chemo and my oncologist advised me it would be a permanent problem. However 18 months since my last chemo the neuropathy has completely disappeared all on its own. I am sure it is nothing to do with anything I did.

Juliax

alysongs profile image
alysongs

Have your Vit B12 levels checked...Chemo and surgery can deplete your stores!

Kim1958 profile image
Kim1958

I finished chemo 2 months ago and neuropathy was really bothering me. I find now that I don't feel it as much or as strongly. It seems to be disappearing. I have also heard that Epsom salts may be helpful. Kim

Cropcrop profile image
Cropcrop

Hi Heatherslade,

Firstly well done on completing the lovely carbo/taxol regime. Hope you've nit been too poorly with it.

I'm now over 2 years since I finished my chemo, I have the neuropathy tingling, pins and needles and occasional shooting pains in my hands and feet.

There are thoughts that Epsom salts can help, acupuncture has been suggested, rolling tennis balls under your feet and electric foot baths could help. There are also Gabapentin and Pregabalin that are drugs for epilepsy that are thought to potentially reduce the symptoms, these are both soporific depending on dose but are sometimes prescribed for the shooting pains.

Sometimes neuropathy will go away by itself within 12 months and sometimes it doesn't. My oncologist has confirmed mine is here to stay. He said that the chemo has damaged the coating on the long nerves in my body and thus results in the symptoms, sometimes the nerves regenerate their coating and the symptoms go away. Hopefully yours will diminish over time but to be honest, mine really doesn't stop me doing anything, I just can't wear nice shoes 👠 and I keep my hands and feet warm in cold weather.

I really hope yours goes away, got my tingly fingers crossed for you 🤞🏻❤xx Jane

Janet235 profile image
Janet235

I think some people suffer more than others and there doesn't seem to be any kind of predictor. The first time I got it after first treatment I was very scared and upset by it but each time it faded away after about a week and now I don't suffer. I absolutely thought I was a prime candidate for longer term neuropathy as I suffer badly from the cold, my circulation in general is terrible and I have carpel tunnel syndrome on my right hand.

I did buy a revitive machine which stimulates the nerves and circulation in your lower legs - expensive but worth a look at - anything to relieve this problem... hope it fades away for you a bit more over time.... Janet

Janine57 profile image
Janine57

I suffered quite a bit during 1st line chemo Carboplatin/Paclitaxol/Beva. I finished carbo/taxol in May and stopped the Beva in December due to first recurrence. My neuropathy has virtually gone from finger tips and remains a little in toes and soles of feet. I do take Magnesium as my levels have been low from chemo but hadn't realised that might have an impact on neuropathy. I am about to start 2nd line Carboplatin/Caelyx so I expect the neuropathy to return.

Good luck, I hope you start to get some relief from your symptoms soon.

Janine x

bibs73 profile image
bibs73

I didn't suffer that much with neuropathy however I do like supplements but before I do I always research the pants off it. Currently I'm pondering taking Alpha-Lipoic and while I've been reading about it I thought of your question. It seams to be used in Germany for treating neuropathy.

umm.edu/health/medical/altm...

I can't say it worked for me as I haven't tried it yet but I thought I would let you know so you can investigate and decide for yourself.

I hope you find something that helps.

Take care

Mxx

Barlow1951 profile image
Barlow1951

My neuropathy started after chemo 3 with tips of fingers slightly affected and both feet more severely. The finger tips returned to normal a few weeks after finishing chemo, but both feet are still affected. I was told they should recover within 12 months from ending chemo, so maybe in 3 months time......? Meanwhile I wear comfy shoes, roll a tennis ball under my toes and balls of my feet and take 2 paracetamol if I know I shall be on my feet for any length of time.

Hope tips from the ladies here are helpful.

All the best,

Barbara

chemlcali profile image
chemlcali

Oh how I wish there was a cure for the neuropathy. I suffer from it daily. In fact, we had to stop chemo after my fourth treatment as I could no longer stand on my feet as the pain was too severe. The trauma I felt from the pain took a very long time to.pass also. I now walk with a.cane but I am not in a wheelchair. I do monthly acupuncture and take gabapentin. I will never be the same but I am alive and NED. Hang in there. Wishing you.well.

Jane

chemlcali profile image
chemlcali

I have not tried it. I mentioned it to my oncologist but she poo- poo'd it. Have you tried it? Dosage?

You may also like...

Lyrica for Neuropathy

question about Neuropathy. Anyone been put on Lyrica because of Neuropathy. Did it help? My...

Neuropathy

When I was having chemo, although I was asked if I had pains in my hands and feet and answered yes...

Neuropathy

Does anyone who has or has had peripheral neuropathy find that it gets worse.my hands and limbs seem

Neuropathy

have had my 4th chemo of Carboplatin and paclitaxel last week. During the 3 chemos, numbness,...

Neuropathy

I've just finished 6 sessions of chemotherapy my toes feet are numb pins needles burning...