Ca125 levels: Doctor has rung me tonight to say... - My Ovacome

My Ovacome

17,706 members19,960 posts

Ca125 levels

annmariewilliams profile image

Doctor has rung me tonight to say level is 41 and I have fuild iny pelvis. I am so scared and have to wait for an appointment to the hospital in the next 2 weeks. I no I have a little cyst on my right hand size only 1.5 cm but nothing else. My go has said its not a good sign.

Written by
annmariewilliams profile image
annmariewilliams
To view profiles and participate in discussions please or .
13 Replies
TinaB1 profile image
TinaB1

Hi Ann Marie

.. Yes, you have signs but you need not worry. It's a precaution and that's the sign of a good GP. Xxx

annmariewilliams profile image
annmariewilliams in reply to TinaB1

Thank u

Are you being referred for a ct scan or have you had one. Try not to worry the only thing I can say is that you doctor is correct in referring you on. The recent NICE guidelines in the Uk on doctors referring patients for a consult if they are not happy are obviously working to your advantage. The sooner a patient is seen the sooner a diagnosis and a better prognosis. So there is method in the madness. Wishing you the best and let us know how you are doing. We are trying here in Ireland to encourage gps be more proactive in referrals but so far, things are going slowly

Decca4Ever profile image
Decca4Ever

I agree with the others. Your GP is following NICE guidelines - good for him/her! That's a small cyst and a slightly elevated Ca125, could be caused by other things or even normal for you. I had a v large cyst, a Ca 125 of 130 and fluid, and it was only a Borderline Ovarian Tumour. Scary until it's been investigated but try not to think the worst.

annmariewilliams profile image
annmariewilliams in reply to Decca4Ever

Thank u

annmariewilliams profile image
annmariewilliams

Thank very much. I am trying to not think about it. My gp has been great and has send off all paperwork as urgent show I show know in the next 2 weeks.

hannakat profile image
hannakat

Don't freak out...the fluid in the pelvis is really easy to drain, I've had it done several times, and not painful. It doesn't sound too bad, so just relax and try not to worry.

annmariewilliams profile image
annmariewilliams in reply to hannakat

Thank u for your reply. Just the waiting game now

annmariewilliams profile image
annmariewilliams

I am getting so scared just sitting waiting for my appointment back to the hospital. In jan the gynaecologist done of the all the test apart from ct scan. And I given the all clear. Now the doctor is sending me back because fuild and my level are a little high. Could they have missed anything or could something have happened in 5 months

annmariewilliams profile image
annmariewilliams

My appointment is next Friday feels like a life time away

maz54 profile image
maz54 in reply to annmariewilliams

Hi - just wanted to say keep strong! I'm also waiting for ct results next week as my ca125 had risen to 52. This waiting game is more stressful than anything! !

Thinking of you xx

annmariewilliams profile image
annmariewilliams in reply to maz54

Thank u so much. I am trying to keep busy. I hope u get uour results soon and it is all clear

maz54 profile image
maz54 in reply to annmariewilliams

Yep I'm trying to keep busy too! I will keep you posted xx

You may also like...

Ca125 level has risen

for my 3 month check and my ca125 has risen from 15 to 64, am now having a CT scan to see what's...

CA125 levels are high

Having visited oncology yesterday for a 6 monthly check up, the specialist has rung today to tell me

Understanding CA125 Levels

What is your CA125 level?

My Mum's CA125 level at diagnosis was almost 13,000 and even though I have scrolled through the...

Fluctuating ca125 levels

weird because my level was 10 one day then the next 11. Then 3 weeks later 12. Do your level...