Caelyx: Hello. I'm a little confused as to... - My Ovacome

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Caelyx

Lovis profile image
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Hello. I'm a little confused as to whether Caelyx makes you lose you hair not. Please can anyone that has been on it let me know. Lovis x

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Lovis
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23 Replies
kazrazmataz profile image
kazrazmataz

Just finished 3 chemos of Carbo/Caelyx, was bald as switched me from Carbo/Paclitaxoll. Hair is growing back thick and fast. Did not have any side effects either (unlike Pacltaxol) so hope you have a similar experience. Good luck xx

Lovis profile image
Lovis in reply to kazrazmataz

Hello, thanks for you reply. I hope you're doing ok. Lovis x

MaggyH profile image
MaggyH

My hair became very thin and I ended up cutting it all off & wearing my wig. My hair is very thin/fine anyway, but it did grow back really quickly after treatment.

Love Brenda x

Lovis profile image
Lovis in reply to MaggyH

Hi Brenda, thanks for the reply. Did the Caelyx work well for you? Lovis xxx

MaggyH profile image
MaggyH in reply to Lovis

It did work well thanks, there was no evidence of disease after 6 doses and my CA125 was down to 8.

Really hope it works as well for you! I had the last dose early June and am still fine.

Love Brenda x

Lovis profile image
Lovis in reply to MaggyH

Oh, Brenda, you've really cheered me up as my old oncologist made me feel that it wasn't very effective that's why I'm seeing a new oncologist tomorrow at the Royal Marsden tomorrow as the old one was so negative. Love Lovis x

cerise profile image
cerise

Hi there

I'm on 4th round of caelyx for 3rd recurrence of PPC. I'm doin fine and no loss or even thinning of hair - always a bonus!

Sending you very best wishes,

Sue x

Lovis profile image
Lovis in reply to cerise

Hello, thanks for you reply. Is the Caelyx working well for you? Lovis xxx

Chez profile image
Chez

Hi,

I had 4 rounds of caelyx in the spring. My hair may have thinned very slightly but certainly didn't lose much.

Hope that's the same for you and very best wishes.

Linda x

Lovis profile image
Lovis in reply to Chez

Hello Linda, thanks for letting me know. Did the Caelyx work for you or did you go onto something else? Lovis xxx

Tricia12 profile image
Tricia12

My hair grew back when on Caelyx, but the drug didn't work so am now on my third chemo treatment of Paclitaxel weekly and have been told that my hair will come out again!! HO HUM - thank goodness for scarves.

Best wishes Pat

Lovis profile image
Lovis in reply to Tricia12

Hi Pat, thanks for your reply. I hope the Taxol works ok. It's all such a worry. Lovis xxx

Suzy profile image
Suzy

3rd round of caelyx. Hair thinning slightly

Lovis profile image
Lovis in reply to Suzy

Hi Suzy, How is the caelyx working? I hope it does the trick. Lovis x

Suzy profile image
Suzy in reply to Lovis

Now on my 3rd lot of caelyx. Only side effect : bad indigestion , which I've never had before. Hair still thin but OK . Ca 125 blood results yesterday show a drop of almost 1,000 from 3,225 to 2,293 . Will have scan fairly soon .

Lovis profile image
Lovis in reply to Suzy

Brilliant! x

positive profile image
positive

Hi, had two Caelyx and no hair loss but it's not working so going to change this week. Good luck. Sue x

Lovis profile image
Lovis in reply to positive

Thanks for your reply . I had heard that Caelyx doesn't always work. What will you go onto?

Lovis x

sasha1970 profile image
sasha1970

Hi lovis, are you having caelyx , I'm possibly going to have a 4th line treatment and have been told that this is the drug I will have ? Do you know how successful it is? X

Lovis profile image
Lovis in reply to sasha1970

Hi Sasha, I think it has varying results from what I can see from the answers I'm getting but a lot of people have had good outcomes so we must pray and have faith that it will be good for us. I don't think you lose your hair but it thins. PLease let me know how you get on. Lovis x

cerise profile image
cerise

Hi Lovis

I am feeling fine and will have scan next month to see what progress has been made. My main symptom is always really bad ascites and was drained before starting caelyx. No return so far so that's a good sign! I have had some indigestion for the first time ever but it does pass. So far so good for me and I hope this is the case for you and everyone else.

Sue xx

Saragnu profile image
Saragnu

My hair was fine, noticed a little more hair loss when brushing but nothing anyone else would have noticed. Good luck. Xx

Lovis profile image
Lovis

Hi, thanks for your reply. Where abouts are you in your journey? Lovis xx

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