I had a serious borderline tumor 10 years ago at 24. I lost the affected ovary,tube, appendix etc This was discovered at my 12 week scan during my first pregnancy.
I had 6 monthly follow ups for 5 years& am now in St James annually. I had a 'complex' cyst on my remaining ovary 2 years ago which sent me Into total panic and the possibility of surgical menopause very close. Luckily it was a benign cyst.
At my most recent check, the subject of hysterectomy was discussed. I'm 34 now & it's surgery I will need to have over the next couple of years. I'm terrified at the prospect of surgical menopause in my late 30s/ 40 at the latest. Even waiting this length of time I'm so worried about the possibility of another tumor in the meantime.
Anything I read online about surgical menopause sounds terrifying. I feel very isolated and alone in all of this. I have nobody to talk to about it. My husband is fantastic but he just doesn't know what to say really apart from saying it will all be ok. What else can he say I suppose. I'm so lucky to have my children so the fertility end of things is not an issue.
I find every little twinge or discomfort in my tummy has me convinced something is going wrong again. This whole experience has changed me as a person. I struggle with anxiety, I feel like I have a dark shadow behind me all the time and now with talk of more surgery, it's like it has stepped closer.
Does anyone have any experience of borderline tumors? I would appreciate any advice.