Hi Ladies.Had my appointment with my oncologist 2 weeks ago.As many of you know,I've been on Orlaparib since January 2016.inoperable,incurable ! Scan last July showed 9 nodules on both lungs,Peritenium involvement,overaries,uterine stranding,lymph Nodes and Pelvis involvement as well as thickening of the appendix and Omentum.Had two previous lines of chemo and Avastin.
Had scan in November.Didnt really ask about results,just asked was it ok and was told yes,very happy with it.Two weeks ago when I visited the Onc I asked for the details.Was totally unprepared for the details! The scan in November showed,no visible recurrence in the pelvic area,no visible sign of involvement on the lungs,peritenium etc.To make sure I heard correctly I asked my GP for the results and she confirmed the same thing.My lifelong companion has fallen asleep,nestled up in a place no longer visible to the eye!
So your probably wondering why I'm tempting fate?! Well since 11th of March I've been having problems in my bladder/ womb area.As they lie so close to each other I'm not sure which is causing the problems.I have pain,but not when going to the loo,it's a constant niggley ache and also frequency to the loo.Ive spoken to someone about it and as told it was cystitis as I had it before.This time though it seems to be ongoing.Ive no visible sign of blood in urine or temperature.Ive also discomfort in my left pelvic area.My Onc ordered another scan for later this month,not because he was worried about anything,he just wants to check on the cancers reaction to the drug.
I'm just wondering did I celebrate my wonderful news too early? My CA125 2 weeks ago was 13 , the same as it has been since March/April 2016.