Is there anyone on this site. - Living with a Stoma

Living with a Stoma

1,019 members257 posts

Is there anyone on this site.

sbactive profile image
5 Replies

Hi

Just wondering if people read this site or if there is another for support etc, I belong to the endo site as well and that is quite busy. This one seems to be much less so, I know there are more opeople with endo than stomps but wondering if there was a more regular site?

Thank s

Steph

Written by
sbactive profile image
sbactive
To view profiles and participate in discussions please or .
5 Replies
Kinsey profile image
Kinsey

Steph:

There seem to be very few people using this site. I would recommend the Inspire ostomy group; it is very active and helpful.

Becky

katanx profile image
katanx

hi I am 43 had 2 kids had endometro about 10 yr ago got it bunt way then it came back ended up having full hysterectomy and then I.b.s then back op now doc says my I.b.s is more poss I.b.d (ulcerative colitis )had stool.sample which showed high colprection and bloods low in iron and folic now had to stop them due to coloscopy and ct scan now bed ridding as hips groin legs sore and so weak think there is a link for all this also suffer joints and muscle pain and weakness and told endo can come back and cause bldder bowel problems e.g pain my life has been put on hold with this docs taking me serious now which is frustrating diet is totally changed but bowels over work and have bowel leakage which affects me mentally

katanx profile image
katanx in reply to katanx

sorry also pass blood muscus and pus hope its not cancer as docs will have me to answer too

l0rik profile image
l0rik in reply to katanx

I also pass blood and muscas and pus . Mine is from diverticula. When it gets an abscess on it. I do have to go to the doc for antibiotic. Not eat for a few days to rest my bowel.

Lorraine k

l0rik profile image
l0rik in reply to l0rik

also bad bowel leakage when I walk. Best tell my story. Have a tranverse stricture from diverticula. Have a sigmoid diverticula also in this site my ovary is attached to my bowel this is on the left hand side. The right ovary has a tumer on it. My wall between my vagina and rear end is loose. Awaiting surgery. They are doing all surgeries in one. Having a colostmy bag installed

You may also like...

No need to worry if i can do it anyone can hand on heart

when problems occur. Same with regard to exercise etc. Eat little to start and build up food...

Stoma hasn’t worked for over 12 hours no pain

Hi, just wondering if anybody has had a stoma that hasn’t worked for more than 12 hours, no stomach...

high ileostomy output

so tiny. I just wondered if anyone else had these problems in the very early days? I’m just...

Husband emergency ileostomy, mucus fistula stoma and anus rectal stump

Now 3 weeks post surgery. Shock for us all. Doing well with ileostomy bag christened Mabel. Hates...

Iliostomy advice confused and very scared