I am almost three years out from Transhiatal esophagectomy for end-stage achalasia. The more active I become, the more I am having a deep pain in my back, hip, and upper thigh. The pain is almost completely on the left side, and made worse by periods of standing, walking, or bending over. The pain is in the lower back and wraps around to the J-tube incision, then down into the leg bone.
I did have a significant infection of the J-tube site, which was finally resolved when the stitches holding the tube in place were removed. The J-tube site was also cauterized with silver nitrate. The J-tube was in for a total of 8 weeks. This was the only complication, with the rest the the recovery normal.
I did have clinically significant malnutrition at the time of surgery due to the difficulties with nutrition from the achalasia. I was also on long-term (10yr) high-dose (Prevacid 30mg twice daily) PPi therapy. I am awaiting the reults of a DEXA scan. All X-rays of the area have been normal. The pain does not improve with anti-inflammatories, which I can only take episodically due to GI effects. I an wondering if possible nerve involvement.
Has anyone else experiened a similar sequence of events? Also, is there a point where you turn the corner with energy level and stamina? Or is low weight (25lbs off good weight) and super low endurance the new normal?